{"id":2390,"date":"2009-08-08T15:37:32","date_gmt":"2009-08-08T15:37:32","guid":{"rendered":"http:\/\/the19thfloor.net\/?p=2390"},"modified":"2009-08-08T15:37:32","modified_gmt":"2009-08-08T15:37:32","slug":"the_worst_birth","status":"publish","type":"post","link":"https:\/\/the19thfloor.net\/?p=2390","title":{"rendered":"The Worst Birthday Present Ever"},"content":{"rendered":"<p>Nick Dupree reminds us that, in many states, people who are ventilator-dependent <a href=\"http:\/\/www.nickscrusade.org\/open-letter-08-09\/\">continue to be forced into institutions when they turn 21<\/a>. It&#8217;s a grim reminder that health care reform should (but probably won&#8217;t) include a uniform set of Medicaid home care services that all states must make available to people with disabilities. Poorer states could receive a helping hand from the feds via an enhanced matching rate or perhaps even full federal funding of these services. It&#8217;s absurd that someone should be threatened with institutionalization just as they are approaching the threshold of adulthood. <\/p>\n<p>It&#8217;s also worth noting that Nick has spent the <a href=\"http:\/\/www.nickscrusade.org\/11th-month\/\">past eleven months in a New York facility<\/a> while he awaits approval for home care services. The longest I&#8217;ve spent in a hospital setting is three months, so I can only imagine the levels of stir-craziness he&#8217;s enduring. Here&#8217;s hoping that Nick can soon make his escape and begin a life of independence and discovery in Gotham.<\/p>\n<div class=\"zemanta-pixie\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"zemanta-pixie-img\" alt=\"\" src=\"https:\/\/i0.wp.com\/img.zemanta.com\/pixy.gif?w=695\" \/><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Nick Dupree reminds us that, in many states, people who are ventilator-dependent continue to be forced into institutions when they turn 21. It&#8217;s a grim reminder that health care reform should (but probably won&#8217;t) include a uniform set of Medicaid home care services that all states must make available to people with disabilities. Poorer states <a href='https:\/\/the19thfloor.net\/?p=2390' class='excerpt-more'>[&#8230;]<\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"sfsi_plus_gutenberg_text_before_share":"","sfsi_plus_gutenberg_show_text_before_share":"","sfsi_plus_gutenberg_icon_type":"","sfsi_plus_gutenberg_icon_alignemt":"","sfsi_plus_gutenburg_max_per_row":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-2390","post","type-post","status-publish","format-standard","hentry","category-uncategorized","category-1-id","post-seq-1","post-parity-odd","meta-position-corners","fix"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p9Iwau-Cy","jetpack_sharing_enabled":true,"jetpack_likes_enabled":true,"_links":{"self":[{"href":"https:\/\/the19thfloor.net\/index.php?rest_route=\/wp\/v2\/posts\/2390","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/the19thfloor.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/the19thfloor.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/the19thfloor.net\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/the19thfloor.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=2390"}],"version-history":[{"count":0,"href":"https:\/\/the19thfloor.net\/index.php?rest_route=\/wp\/v2\/posts\/2390\/revisions"}],"wp:attachment":[{"href":"https:\/\/the19thfloor.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=2390"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/the19thfloor.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=2390"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/the19thfloor.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=2390"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}