{"id":2472,"date":"2009-11-05T20:06:46","date_gmt":"2009-11-05T20:06:46","guid":{"rendered":"http:\/\/the19thfloor.net\/?p=2472"},"modified":"2009-11-05T20:06:46","modified_gmt":"2009-11-05T20:06:46","slug":"born_into_preca","status":"publish","type":"post","link":"https:\/\/the19thfloor.net\/?p=2472","title":{"rendered":"Born Into Precariousness"},"content":{"rendered":"<p>The BBC reports on the case of <a href=\"http:\/\/news.bbc.co.uk\/2\/hi\/health\/8343349.stm\">Baby RB<\/a>, who is at the center of a legal battle between his mother and father that may ultimately determine whether he lives or dies. Baby RB has a myasthenic syndrome, a congenital condition that makes it impossible for him to breathe independently. The father wants his son to have a tracheostomy, which might assist his respiratory functions. The mother, supported by the hospital, wants all life support systems removed from the boy.<\/p>\n<p>I&#8217;m in no position to judge either parent&#8217;s actions. Baby RB&#8217;s disability is undoubtedly severe and, should he live, he will probably require constant care. But ventilators are becoming smaller and more portable all the time. The twenty-first century U.K. is probably as good a time and place as any to grow up with a severe disability. <\/p>\n<p>In the end, the decision rests with parents. Here&#8217;s hoping they can come to agreement with minimal intervention from the courts. <\/p>\n<div class=\"zemanta-pixie\"><img data-recalc-dims=\"1\" decoding=\"async\" class=\"zemanta-pixie-img\" alt=\"\" src=\"https:\/\/i0.wp.com\/img.zemanta.com\/pixy.gif?w=600\" \/><\/div>\n","protected":false},"excerpt":{"rendered":"<p>The BBC reports on the case of Baby RB, who is at the center of a legal battle between his mother and father that may ultimately determine whether he lives or dies. Baby RB has a myasthenic syndrome, a congenital condition that makes it impossible for him to breathe independently. The father wants his son <a href='https:\/\/the19thfloor.net\/?p=2472' class='excerpt-more'>[&#8230;]<\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"sfsi_plus_gutenberg_text_before_share":"","sfsi_plus_gutenberg_show_text_before_share":"","sfsi_plus_gutenberg_icon_type":"","sfsi_plus_gutenberg_icon_alignemt":"","sfsi_plus_gutenburg_max_per_row":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-2472","post","type-post","status-publish","format-standard","hentry","category-uncategorized","category-1-id","post-seq-1","post-parity-odd","meta-position-corners","fix"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/p9Iwau-DS","jetpack_sharing_enabled":true,"jetpack_likes_enabled":true,"_links":{"self":[{"href":"https:\/\/the19thfloor.net\/index.php?rest_route=\/wp\/v2\/posts\/2472","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/the19thfloor.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/the19thfloor.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/the19thfloor.net\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/the19thfloor.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=2472"}],"version-history":[{"count":0,"href":"https:\/\/the19thfloor.net\/index.php?rest_route=\/wp\/v2\/posts\/2472\/revisions"}],"wp:attachment":[{"href":"https:\/\/the19thfloor.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=2472"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/the19thfloor.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=2472"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/the19thfloor.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=2472"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}