Dec 082008
 

For me and others with physical disabilities, comfort is a game of inches. An almost imperceptible shift of the hips or tug on a leg can separate “just right” from “totally messed up”. My body’s unique curves and twists, combined with a form-fitting seat, only increase my positional sensitivity. To give you an idea of my fussiness, here’s a typical exchange between me and my nurse:

ME: Would you move my pillow to the right?

BELEAGUERED NURSE: Sure. How’s that?

ME: Down a bit. 

NURSE: Okay.

ME: Slightly to the left.

NURSE: There?

ME: Up a little.

NURSE: That’s where it was to begin with.

ME: Perfect.

Dec 072008
 

I’m pleased to see that Obama’s plans for rebuilding the country’s infrastructure include the expansion of broadband access. People in rural America still lack affordable, reliable, and reasonably speedy pipelines to the Internet. In urban areas, broadband access remains unaffordable to many low-income households. We’ve been extolling the virtues of telecommuting for well over a decade, but businesses won’t truly commit to the concept until high-capacity broadband is as ubiquitous as the old copper-wire telephone network.

It will come down to implementation, of course. I certainly don’t favor rewarding the telcos for their monopolistic practices and any funds they receive should have strong consumer safeguards attached. Internet service providers are delivering a utility vital to the country’s economic health and they should be regulated as such.

Dec 062008
 

Someone recently e-mailed me about a $500 scholarship opportunity for college students who use wheelchairs. More information is available here. The rules require applicants to have a 3.0 GPA and to complete a 500-word essay. No, I will not write it for you. The deadline for entry is January 1.

I hadn’t heard a good mashup in a while, but then I came across this mix of Radiohead’s “Reckoner” and Kanye West’s “Love Lockdown”. The chilly atmospherics of both songs mesh well together without putting you to sleep.

Dec 052008
 

You sometimes have to credit American businesses for the sheer audacity they show in their drive to make a buck. A gun manufacturer is trying to win government approval to classify a handgun adapted for people with disabilities as “durable medical equipment”. Such a classification would qualify the manufacturer to receive payment from Medicare and private insurance companies. The company has vanishingly little hope of actually getting this approval and I don’t have a problem with that. But I do smile when I imagine a physician sitting at his desk and trying to write a letter of medical necessity for Aunt Ruthie’s 9mm.

Dec 042008
 

Stephen Hawking is coming to Ottawa next summer? I’d better put in for my vacation time now so I can make it up there for our joint press conference to announce There Will Be Blood: Siegel vs. Hawking. Oh, yes, our zero-g deathmatch is still on. We ran into a few hitches booking the International Space Station, but then we got some funding from a couple venture capitalists who think that gimp gladiator matches in Earth orbit could be bigger than the World Series of Poker. Hawking is still demanding top billing, but I’m letting my agent deal with him. The dude’s such a diva.

Dec 032008
 

I’ve previously written about my desire to do some pro bono work and today I received my first case assignment. It’s relatively straightforward: writing letters to harassing creditors. For someone like me who doesn’t practice in the traditional sense, this kind of case is perfect. I’ve written other types of letters for friends and family and they’re never anything fancy–I don’t sprinkle them with Latin or cite caselaw–but they do seem to produce results. Big Corporation may or may not respond to a letter from a disenchanted customer, but it almost certainly will respond to a letter from the disenchanted customer’s attorney. The scale of American business makes customer relationships a public relations abstraction and sometimes the only way to get a complaint addressed is to wrap it in adversarial packaging.

Dec 022008
 

Minnesota has a reputation of providing quality health care to its citizens. But, according to an analysis of federal quality measures, our home health care agencies rank abysmally low in comparison to those in other states. It’s an alarming finding, but I’m not sure how accurately it reflects the true state of affairs. For one thing, the data was gathered from only 160 Medicare-certified home care agencies in Minnesota. There are hundreds more agencies that provide personal care services throughout the state and many aren’t Medicare-certified because they don’t need to be. Any discussion of home care quality should encompass the whole range of providers. Second, I’d like more information about the quality measures themselves. The article notes that the measures reflect “the percentage of patients who get better at walking, bathing, taking medications and other measures of well-being”. Okay, but how do the agencies track this data? Does a visiting nurse fill out a form during a monthly visit? Does the nurse know the person well enough to accurately comment on whether improvement is occurring?

I also find it interesting that owners of the higher-performing agencies quoted in the article emphasize their strong relationships and familiarity with their clients. One of the most common complaints about home health agencies is that their inability to retain staff results in inconsistent care for the person. That was definitely one of my complaints about the nursing agencies I used and it was a contributing factor to my decision to stop using agencies.

Dec 012008
 

If you’re in the northern hemisphere and the night is clear, go outside right now and look toward the southern sky. You’ll see the crescent moon with Venus and Jupiter in close proximity. Venus is the brilliant white star and Jupiter is the pale red dot. Despite all the light pollution downtown, I can see them quite clearly from my window and it’s quite lovely.

Nov 302008
 

On both my office and home computer, I “click” the mouse via a small adaptive switch that rests under my right thumb. The switch registers small muscle movements and I have decent movement in my thumb, so it’s an effective solution. But that only gives me access to the left mouse button. If I want to get my game on or perform other tasks that require the right mouse button, then another switch is required. In the past, the second switch would usually be tucked inside my left hand. My left hand has less strength than my right and finding the sweet spot for activating this second switch has always been a chore. And recently, my left hand has gotten even more uncooperative. I’m not sure if it’s further muscle atrophy or subconscious laziness, but generating movement in my left hand is more difficult now than it once was. That’s left me searching for alternate muscles to activate the switch.

I was explaining the situation to one of my nurses, who reminded me that I can move my ears. I hadn’t thought of this. Wiggling my ears was always good for amusing little kids and scoring “cute” points with the occasional girl, but it didn’t seem to have much practical utility beyond that. After a little experimentation, we managed to position the switch just above my left ear, where it was held in place by the stem of my glasses. It works pretty well and is more comfortable than the previous set-up. And the irony of using one disability (my astigmatism), combined with a freak talent, to compensate for another disability is cosmically funny.

This should tide me over until I can get that neural implant.

Nov 292008
 

I’m sure the people of the small Canadian town of Caledon are, by and large, good and decent folks. They can’t all be as unpleasant as the resident who wants a neighboring family’s allegedly smelly miniature pony removed, despite the fact that the pony is used for therapeutic riding by a young boy with cerebral palsy. And here I thought that all Canadians were genetically predisposed to amiability and civic-mindedness. How disheartening to realize that they are just as susceptible to moments of dickish behavior as the rest of us. But I have yet to hear anything bad about New Zealanders, so perhaps humanity isn’t completely irredeemable.