Nov 282008
 

I flexed my self-control muscles today by going into a bookstore, browsing, and then leaving without buying anything. I’m feeling quite smug. But as I was scanning the books in the science fiction/fantasy section, I noticed that a certain style of book cover has become quite popular. These covers feature illustrations of svelte young women’s rear profiles; young women who seem to share an affinity for tight clothing and pagan/wiccan/whatever tatts on their lower backs. A quick glance at the cover blurbs reveals that these women are entangled in generally dysfunctional relationships with vampires, demons, and such. It’s a weird fusion of fantasy and bodice-ripper that Tolkien probably never would have imagined.

I’ve decided that my next book will be about a bad-girl hottie who works as a personal care assistant during the day and hunts vampires at night. Clearly, this kind of stuff sells and I don’t want to miss my opportunity to cash in.

Nov 272008
 

The next time we do Thanksgiving at my place, I’m having the thing catered. My kitchen isn’t the most well-stocked in the world and I’d like to save my parents from paying way too much for a carton of convenience store eggs.

I hope everyone is enjoying the holiday and settling into a pleasant tryptophan-induced fog. Thanks for sticking with me for another year.

Nov 262008
 

Today was my last day spent in my current position, which meant that I spent most of the day in a somewhat frantic state as I finished up some outstanding tasks. The four-day weekend will provide me with an opportunity to catch my breath before I plunge into a new policy area. I’ve appreciated all the well wishes and congratulatory remarks I’ve received from colleagues. My calendar is already filling up with meetings and I have a feeling it’s only going to get busier. A bureaucrat’s life is never dull.

Nov 252008
 

The Wall Street Journal reports on how the worsening economic climate is forcing states to reduce community-based services for the elderly and people with disabilities. Waiting lists for services are growing and many affected by these cuts are dipping into their own very meager funds to pay for personal assistance. For some, a nursing home is the only remaining option. With a looming deficit of $4 billion, Minnesota is almost certain to implement similar cuts.

One fact from the article caught my attention: in 2006 Medicaid spent about $47 billion on nursing-home care and $15 billion on home- and community-based services. That’s a difference of over threefold and an indicator that we still have a long way to go towards removing the institutional bias in Medicaid spending.

Nov 242008
 

Assisted suicide is the topic du jour in the British press. After I posted about Noel Martin’s story on Sunday, I learned about Dan James. James was a 23-year-old rugby player who became a quadriplegic after a training injury in 2007. Earlier this fall, he traveled to Switzerland with his parents for an assisted suicide.

In related news that was drowned out by the presidential election results, Washington state passed a ballot measure that legalizes physician-assisted suicide for terminally ill individuals. It becomes the second state after Oregon to have such a law on the books. The Swiss law is much more permissive; it does not require the involvement of a physician nor does it require that the person have a terminal illness. It’s difficult to conceive of any jurisdiction here in the U.S. enacting anything similar. I’ll be curious to see how other European countries–especially Britain–strengthen or weaken their own laws on assisted suicide in response.

Nov 232008
 

It’s almost time to turn the page on 2008, which means the inevitable end-of-year pop culture lists are beginning to show up. A continuously updated compilation of this year’s lists can be found at Fimoculous, which has become the go-to site for this sort of thing. Sure, these lists are arbitrary and often exclude works that didn’t have huge PR campaigns, but I still enjoy them. They’re brain candy, lacking much substance but easily devoured. And despite the tendency of these lists to parrot each other, I usually discover at least a few items that are worth adding to my Amazon wishlist.

Nov 222008
 

I was listening to the BBC late last night when I heard this interview between Liz Carr, a woman with a disability and freelance reporter, and Noel Martin, who was paralyzed in a neo-Nazi attack twelve years ago and is now seeking assistance to die from a Swiss-based euthanasia group. The conversation between Liz and Martin raises many of the questions familiar to those of us who who have been tracking the ongoing debate on disability and assisted suicide. What constitutes an acceptable quality of life? Does the right to privacy include the right to terminate one’s own life? How do society’s views on disability influence the decision to end one’s life?

After listening to the full interview, I’m struck by a couple things. First, Martin seems incredibly despondent about his situation. The BBC provides some videos of Martin’s daily life and he has been confined to bed for several months, which would depress anyone. Second, Carr can’t seem to grasp the scope of Martin’s enduring grief for the life he had before his injury. The two are talking past each other, neither one really able to understand the other’s perspective. Martin can’t imagine realizing any sense of independence in his current state and Carr can’t imagine his isolation. I have a difficult time imagining it myself.

I don’t expect Martin to change his mind about ending his life and, judging from the reactions of the callers to the live portion of the broadcast, he has plenty of support. But it seems too easy to say that his decision is a mistake or rooted in chronic depression. Life with a significant disability is a struggle and to suggest otherwise would be an act of denial. And if I suddenly experienced a dramatic change, like loss of sensation or the ability to speak, I can’t be sure how I would cope.

Nov 212008
 

Typealyzer is a site that claims to analyze the personality type of a blog’s author. I entered the address for The 19th Floor and received the following results:

The charming and trend savvy type. They are especially attuned to the big picture and anticipate trends. They often have sophisticated language skills and come across as witty and social. At the end of the day, however, they are pragmatic decision makers and have a good analytical abilitity.

They enjoy work that lets them use their cleverness, great communication skills and knack for new exciting ventures. They have to look out not to become quitters, since they easily get bored when the creative exciting start-up phase is over.

Witty and social? Charming? Oh, stop, you’re embarrassing me. Seriously, this strikes me as fabricated nonsense designed to serve as a mood lift for the egotistical blogger. Any analytic software worth its salt would have wasted no time pointing out my numerous and glaringly obvious neuroses and insecurities.

Nov 202008
 

I’ve wanted to share this news for a while, but I had to wait until everything was made official. I recently accepted a promotion to the Health Care Eligibility and Access Division within the Department of Human Services. After seven years in Disability Services, I’ll be moving into a more advanced position with both policy and legislative responsibilities. My focus will primarily be on health care programs for kids and families, including Medical Assistance and MinnesotaCare.

Of course, I’m thrilled to get this opportunity, although it probably won’t seem completely real until my start date (December 1). The upcoming legislative session promises to be challenging and I’m looking forward to getting a closer look at the process. The next few months are going to be crazy busy as I settle into my new role and familiarize myself with a complex and evolving set of policies. And any health care reforms that materialize at the federal level are likely to directly affect my work. I’ll get to play a small but meaningful role in ensuring hundreds of thousands of Minnesotans have access to affordable, quality health care.

I’m incredibly fortunate to live in a time and place that has given me the means to put my talents to use and achieve some measure of success. I’ll try to keep that thought close in the weeks and months ahead.

Nov 192008
 

MPR’s website has photos of some of the ballots that the Franken and Coleman campaigns have challenged in the first day of the vote recount. I do not envy the state canvassing board, the body charged with ascertaining the voter’s intent on each of these ballots. Its members will have to endure Talmudic debates over the meaning of a partially filled-in bubble, an ambiguous smudge, or a haphazardly drawn line. And I don’t envy the lawyers whose job it will be to make those arguments. If I was in their position, my ears would start to bleed sometime before lunch on the first day.