Oct 302008
 

Senator McCain’s proposed health care “reform” centers around a proposal to give everyone a $5,000 tax credit that they can use to purchase insurance on the private market. But that five grand isn’t going to stretch as far if you’re a woman. As the chart below illustrates, women already pay significantly more than men for individual health care coverage:

Insurers justify this sex-based discrimination by arguing that women are more likely to receive check-ups and take prescription medications. In other words, ladies, it’s your own fault. If you could just learn to buck up and stoically ignore your medical issues like us manly dudes, you wouldn’t be facing this problem.

The private insurance market is one of the few sectors in the American economy that is allowed to employ naked bias as a tool for profit. Let’s hope that changes soon.

Oct 292008
 

The suits at MTV finally realized it might be worthwhile to stick all of those old music videos on the web. Titled simply MTV Music, the site contains almost 20,000 videos and more are being added each day. Sure, many of these can be found on YouTube, but the quality of the MTV-hosted videos seems uniformly good. Here’s Bjork’s “All Is Full of Love”, for no other reason than I think it’s a cool video:

Oct 282008
 

The UK newspaper The Observer recently published the results of its Sex Poll, which included this question: Have you ever had sex with someone with a physical disability?

The results were as follows:

70% said No, and I don’t think I would.
26% said No, but I would not rule it out.
4% said Yes

Those numbers don’t surprise me and I suppose I could use them as a justification for throwing my hands in the air (er, figuratively) and settling in for a life of celibate bachelorhood. But I’m not really interested in trying to earn the affection of that 70%. Those are probably the same 70% that refuse to try sushi or watch a movie with subtitles; the boring and the conformist. I’m more interested in seeking out members of the other 30%. Those are the interesting people. They’re not easy to spot and it takes more than a little time and luck to find them, but they’re out there.

These statistics simply reaffirm that disability, in the abstract, is not attractive to most people. But individually, we gimps are not abstractions.

Oct 272008
 

Thanks to a meeting I had in downtown Minneapolis this morning, I was able to make a quick stop at the Government Center to vote early. So, for me, this election is now over.

I’ve been talking to friends with similar political views and many of them are still nervous about the outcome on November 4th. After getting burned in both 2000 and 2004, they can’t quite bring themselves to believe that the Democrats are on offense now. We certainly can’t afford to be cocky or complacent in this final week, but I don’t think I’m casting a jinx when I say that an Obama defeat is extremely unlikely. A friend of mine recently observed that the candidate who runs the better campaign usually wins. McCain’s first mistake was to abandon his carefully constructed image as a moderate to solidify his support among a shrill and forlorn base; a base already feeling neglected and betrayed by the current president. That fatal decision led to tactics that might have had currency in 1984, but don’t resonate in 2008.

McCain wanted so much for the social conservatives to love him, but he knew that he really wasn’t one of them. Which led him to Palin. Palin was supposed energize the evangelicals who were wary of McCain, but instead she only fanned the flames of discontent and fear. Sure, she attracted crowds. But under her spell, those crowds became mobs.

Meanwhile, Obama has run a campaign that is groundbreaking ($150 million in one month!) while being remarkably conservative in tone. Against all expectations, he maneuvered himself to be viewed as the safe, sensible choice. To put in pop culture terms, Obama is Atticus Finch to a lot of voters. Reassuring, calm, deliberate.

What I’m trying to say is this: Obama will probably win because the narrative of this race works strongly in his favor. And while I wouldn’t recommend swagger at this point, a little strut is certainly permissible.

Oct 262008
 

The New York Times reports on computer manufacturers that are trying to decrease bootup times–the time it takes your computer to power on, load the operating system, and generally make itself ready for use. I just rebooted my computer and it took about 35 seconds, but I hardly ever power it down. My work computer probably takes a little longer to boot, but again, it stays powered on most of the week. And in both cases, I usually don’t mind waiting. Maybe that’s because I’m now old enough to remember when computers took a loooong time to boot, long enough to get up, go check the mail, come back, and wait some more. The current state of affairs seems more than tolerable.

But I’m probably part of a dying breed. I’m comfortable with having a few empty moments when I’m not doing something.

And ten years from now, when boot times are a thing of the past, I’ll wonder how I once put up with wait times of 35 seconds.

Oct 252008
 

A few odds and ends that I’ve been meaning to post:

  • I blogged a few years ago about Nick Dupree, a disability activist living in Alabama who battled the state to keep his nursing coverage after he turned 21. Nick recently moved to a rehabilitation hospital in New York and he’s blogging about his experiences in his newly adopted city here.  
  • Matt Eddy is on a trek across the country in his vent-equipped wheelchair to raise money to build accessible housing for people with severe physical disabilities. Matt is blogging about his ambitious road trip and, in his most recent entry, he was approaching the California coast.
  • Mark Udall, the Democratic Senate candidate in New Mexico,  is running this ad featuring an Iraq War veteran who is quadriplegic as a result of a combat injury:

     

  • Matt Eddy is on a journey across the countrymin
Oct 242008
 

A few of my friends with SMA have had some health problems lately. Today, in an effort to appear sensitive, I suggested to one of them that we should start a pool to place bets on which one of us will meet our demise first. She thought it was a great idea. I advised her to put her money on me, but she would have none of it. “You’re going to be puffing on your vent long after the rest of us are gone,” she said.

I’m not so sure about that. When the coming economic collapse forces all of us into the countryside to scavenge for food, I’m going to have a hell of a time finding a working electrical outlet to keep said vent puffing away.

Oct 232008
 

A California ballot initiative–Proposition 8–seeks to ban same-sex marriages through an amendment to the state constitution. If this initiative passes, it would effectively dissolve thousands of couples’ marriages. A few weeks ago, polls showed Prop 8 heading for an easy defeat, but then conservative groups cranked up the fear-based rhetoric and the polls have tightened.

Prop 8 is nothing more than a shameless effort to codify discrimination. The intent is spelled out right in the title: “Eliminates Right of Same-Sex Couples to Marry”. It deserves defeat, but it’s going to take money to make that happen. You can contribute here to show your support for the countless couples, present and future, who seek nothing more than equal status under the law.

Oct 222008
 

In an average week, at least a couple strangers will make comments about my ventilator. The comments are usually variations on “That’s some contraption” or “That’s some set-up you’ve got there.” It usually happens in elevators when I’m facing away from the doors, giving fellow passengers a good view of the back of my chair. And to the untrained eye, my equipment probably does look exotic. My vent of choice is a boxy thing that hasn’t shrunk in size since I started using it in 1987. There’s also the attached humidifier, the external battery, my portable suction machine, and my supply bag. Taken all together, these items probably weigh almost as much as I do.

Comments like this used to surprise me. It’s not that I forgot about all the gadgetry on the back of my chair; it’s that I didn’t consider it that interesting. To me, this stuff is boring and utilitarian, like my keys or my wallet. But what I consider commonplace, most other people find incredibly foreign.

Oct 212008
 

My local cable company just boosted its broadband speeds for most customers in the Twin Cities, while holding the line on price. Those of us who had been on the 6Mbps tier have been bumped up to 12Mbps. Normally, this news would have me smiling; anything that will give me faster access to videos of chimps riding Segways has to be a good thing. Unfortunately, my own Internet connection seems to have caught a cold in the last few days. I’m averaging about 800Kbps, not much better than dial-up. A lengthy call to tech support didn’t solve the problem, so I’ll be roughing it until the tech pays a visit on Friday. Keep me in your thoughts during this time of hardship.