I’m leaving shortly for my caucus, where I’ll be supporting Barack Obama. I like and respect Hillary, but Obama is the kind of candidate who comes along once in a generation. He has the capacity, more than any other political leader I’ve seen in my lifetime, to restore our faith in ourselves and our country. He personifies all the best qualities of the American civic character: intelligence, vision, passion, and humility. Clinton would make a fine president and I will gladly support her if she is the nominee. But tonight, I’m feeling like I can play a small part in ushering in an age of transformation that finally slams the door shut on the twentieth century and carries us into a future we’ve imagined for far too long.
Scientists have figured out how to infect mice with the virus responsible for the common cold. They claim that this could lead to a more complete understanding of the virus’ behavior and the development of possible treatments. This is not great news if you’re a lab mouse, but it probably beats grislier fates like having your spine severed or being forced to digest carcinogenic substances.
During one of my frequent hospitalizations as a kid, the nursing staff in the ICU created a laminated spelling board for me to use as a communication tool until the respirator could be removed from my throat. The cumbersome process of pointing at letters to express myself caused me to lose my patience on several occasions. My words trickled out at a maddeningly slow pace, crude approximations of the thoughts racing through my head. But my own brief experience with losing my speech faculties pales in comparison to that of Jean-Dominique Bauby in The Diving Bell and the Butterfly, based on his book of the same name.
Bauby, the editor of Elle magazine, had a massive stroke that left him completely paralyzed, able to blink only his left eye. He learns to communicate again by having the alphabet recited to him and blinking to indicate the letter he desires, slowly spelling out words and sentences. Through this method, he eventually writes a book about his life with locked-in syndrome. Aiding him in his endeavor are several beautiful and compassionate women: therapists, assistants, and former girlfriends. Never has the alphabet sounded so alluring. But the film really shines in conveying how Bauby’s universe has shrunk after his stroke, encompassing little more than the confines of his room and the hospital grounds.
I check out Mac-related assistive technology sites from time to time and I’m beginning to think that all the interesting developments in gimp-centric technology are taking place on that side of the fence. Mac users have great-looking on-screen keyboards that are frequently updated, while my OSK is essentially unchanged from the version I first bought in the early Nineties–jaundiced color scheme and all. I don’t necessarily want to give up my Windows box, but I wouldn’t mind having a Mac share my desk space. I’d need a bigger desk, though.
Someday, I will actually give in to my Mac lust. You’ll see.
Two women with mental disabilities were sent into Baghdad markets today with explosives strapped to their bodies, which were then detonated remotely (although the last fact seems to be disputed by American authorities). We’ll probably never get the complete story, but I’m sure people with disabilities have been used like this in other conflicts. My friend Rose best summed the appropriate reaction to this event in one word: ick.
California’s effort to extend universal health care coverage to its residents stalled in committee and appears to be dead. As the Wall Street Journal rightly points out, individual states don’t have the political authority to keep health care costs under control. These attempts by states to develop their own patchwork solutions are interesting, but I don’t see them as viable solutions. The deteriorating economic outlook isn’t going to do much to encourage other states to experiment with expanding health care coverage. All this is to say that the only viable solution is a national solution. But for any national solution to be really effective, it must address the market forces that drive costs higher. I’m still not convinced that either Clinton’s or Obama’s plan does this.
The Gimp Parade links to a news story describing how the power outages in Gaza brought on by the Israeli blockade are affecting people like Maher Al-Assali, a Palestinian boy who is ventilator-dependent. During the frequent blackouts, the boy’s family must manually ventilate him with an Ambu bag.
This post isn’t intended as a criticism of Israeli policy. But having been in situations where my ventilator quit working, I can tell you that manually bagging someone is exhausting work for the bagger and rather uncomfortable for the bagee. A human being can’t possibly mimic the regular, measured breaths of a mechanical ventilator.
The Republicans look poised to nominate an old white man for president. Quel surprise. McCain would be a tough opponent, especially considering his appeal to independents as a self-styled “maverick”. Then again, plenty of conservatives absolutely revile the man. McCain seems to inspire a lot of anxiety in the progressive blogosphere, but it’s a waste of time to fret about who will emerge as the opponent. If Democrats can’t capitalize on the current political climate, they don’t deserve to win.
Deaf employees at Pepsi produced this clever ad that will appear during the Super Bowl pre-game show. The lack of sound is going to have a lot of people fumbling for their remotes, but it makes the ad that much more effective. Other major corporations might want to take notice and consider doing some advertising targeted at the disability community. Our collective discretionary income is only going to increase as more employers open their doors to us.
Thanks to my colleague Sonny for the tip.
Fellow Gen-Xers: I present you with three hours of MTV from 1983, complete with commercials. Lose yourselves in the mulleted awesomeness of Night Ranger. Get funky with the so-white-they’ll-make-you-go-blind Huey Lewis & the News. Sigh with nostalgia at the ads for cassette tapes.
And if you’re late for work tomorrow because you stayed up late reliving your youth, don’t come crying to me.
