Jun 202005
 

When I was home sick a couple weeks ago, i found an interesting photographic exhibit on the web that I meant to discuss, but then promptly forgot in my feverish daze. The exhibit is titled Intimate Encounters and it features photos exploring disability and sexuality. CAUTION: Many of the pictures feature nudity and are definitely NSFW, so click with care. The photos are frank in their depiction of the erotic lives of people with disabilities and several of them are quite lovely. I admire the people who were willing to pose for these images (most of whom seem to be Brits and Aussies). I’m not sure I’d have the chutzpah to bare my crippled ass for the whole Internet to see. I wonder what kind of reaction these photos get from audiences. And I wonder if the photographer has any plans to shoot in America.

Jun 192005
 

Today’s Star Tribune has another disability-related column. I’m beginning to wonder if the Strib is controlled by some shadowy gimp cabal. This column discusses a local Catholic high school that declined admission to a student with muscular dystrophy, only after initially accepting him. Apparently, the school decided they could not accommodate the kid’s accessibility needs. It’s been a while since I’ve looked at federal IDEA law and I can’t remember what obligations it places on private schools. But I have heard of other stories of private schools turning away students with disabilities. Often, they simply don’t have the facilities and the experience to accommodate students with disabilities. But how do you reconcile that with the ideal that a student should be able to attend the public or private school of their choice, regardless of disability? The school mentioned in this article was built in 1932 and might not even have an elevator. They probably don’t have a paraprofessional staff trained to assist the kid with daily needs like going to the bathroom. Was it reasonable for the parents to expect their child will be safe and comfortable in such an environment? Or should the school be required to bear all the necessary costs of accommodating him?
I’m just asking.

Jun 182005
 

The Star Tribune has a brief column on Cheri Blauwet, a wheelchair marathoner who competed in this weekend’s Grandma’s Marathon in Duluth. She finished second in the women’s wheelchair category.
I’m getting tons of trackback spam and my efforts to reduce it have so far been unsuccessful. I’m about ready to permanently de-activate trackback on all future entries, but I don’t think that would solve the problem. Any suggestions?

Jun 172005
 

Dear Media,
I am getting a little horrified with your coverage of the increasingly creepy Tom Cruise/Katie Holmes thing. There are many things in this mad, mad world that deserve media attention. This isn’t one of them. Put the cameras away; you’re only encouraging them. I know times are tough now that the Michael Jackson trial is over, but I can tell that even you’re not buying this spawn of Hollywood PR. Besides, you know what you really want to do is make long-form documentaries. So go clean yourself up and we’ll forget this ever happened.
Yours,
Mark

Jun 162005
 

The topic of Medicaid continues to preoccupy the minds of our nation’s governors. Yesterday, the National Governors Association presented its recommendations on Medicaid reform to a Congressional panel. There was a lot of consternation surrounding proposed co-payments for Medicaid enrollees. In Minnesota, most Medicaid enrollees already are required to pay co-payments for things like prescription drugs and clinic visits. I also pay a pretty hefty monthly premium for my Medcaid coverage (but that’s because I’m employed). In theory, I’m not opposed to the idea of co-payments. Health care is one of those things in which people should feel invested, even if it’s at a very basic level. A small co-payment for things like ER visits might encourage people to seek treatment sooner, before a crisis develops. I think co-payments could be structured in such a way so as to protect even the poorest beneficiaries, perhaps through a federal cap that limits co-payments to a certain percentage of income.
As I keep saying, Medicaid needs reform to remain sustainable and this is one option of many worth considering. I get frustrated with lawmakers, many of them fellow Democrats, who seem unwitting to look at even modest changes to Medicaid. I’m totally with them on ensuing access to quality care for as many people as possible, but I think that goal doesn’t necessarily clash with making the system a little more participatory as well. Don’t tell anyone, but I think Medicaid could serve as the precursor to some kind of national health insurance. And if we’re serious about making national health insurance a reality, we need to start by addressing the problems and inefficiencies in the current model.

Jun 152005
 

It’s a beautiful evening outside, so I’m going try and get away from my desk for a while. But before I go, I want to comment on Bob Geldof’s upcoming Live 8 concert. It undoubtedly has a great line-up, but I’m not sure it will have the same cultural resonance as the 80s Live Aid event. That concert pitched a very specific mission: feed starving Africans. This one seems to have a more amorphous message. Is it to promote debt relief in developing nations, bring pressure on G8 leaders to be more compassionate, or what? And will it really make any difference in the long run? And will the reunion of Pink Floyd really live up to the hype?
Regardless, I’ll dutifully TiVo the thing. I just hope Bono doesn’t get all professorial and does a ten-minute PowerPoint presentation on debt relief before launching into “Beautiful Day.”

Jun 142005
 

I’m trying to get my strength back after getting my butt kicked by this virus. Not quite back to normal yet, but I’m getting there. In the meantime, I’ve been looking at a lot of movie trailers. The trailer for Murderball, a documentary about wheelchair rugby, looks promising. I’ll gladly shell out eight bucks to watch some badass gimps in souped-up wheelchair go all gladiator on each other.
Yeah, I’ve probably commented on this film before, but it looks really cool. It makes me want to go out and buy a Murderball T-shirt. I like how the trailer seems to emphasize that having a physical disability doesn’t necessarily mean one isn’t physical anymore. Like everyone else, gimps just want to smash shit up sometimes.

Jun 132005
 

There are some extremely dark clouds moving over my building from the south. Very “dark and storm night”-ish. My nurse is trying to take some pictures with my digicam, so we’ll see if any of those turn out. Lightning is sheeting across the sky; it almost has a purple tinge to it. I can see the running lights of planes descending through the clouds as they make for the airport. Quite a show. I wonder if I should get away from my computer. Nah, this building is one ginormous grounding wire. I’m pretty sure I’m safe.
Speaking of weather pr0n, here’s a slick Flash presentation from National Geographic showcasing the successful placement of a probe in the path of an oncoming tornado.

Jun 122005
 

Just realized I need to get a new passport. I have a passport that’s about twenty-five years old, but I’ve changed a bit since then. I hope getting a passport photo is easier than getting a Minnesota ID photo. When I needed a picture for my new ID, I had to cram myself into a little booth. And when I was finally situated, the county clerk discovered that her fancy automated camera wouldn’t swivel down far enough to see my face. My nurse had to lift me out of my chair for the camera to see me, which explains my slightly peevish look in the finished product.
If anyone knows of a medical supply company in the UK or France where I could rent a suction machine like this one, drop me a line. The one I have won’t run on 220v electricity, but I’m thinking there has to be a similar European model.

Jun 112005
 

Sorry for the skipped entry yesterday. After I got home from work, I took a turn for the worst. I spent all night in bed and got scared enough to visit my friendly local emergency room. They pumped me full of drugs and sent me home. Feeling better now.
Whenever I get sick enough to start getting a little freaked, I try to remind myself that I’ve tussled with some badass microbes and came out on top. I may lose to the little bastards someday, but right now I have a birthday party to organize and a trip to Europe to plan. Carpe diem and all that.
So send the dancing girls and a full complement of Swedish masseuses to aid in my recovery.