If I was asked to name one issue in 2005 that could affect millions of people with disabilities, it is the future of Medicaid. Medicaid, for you laypersons, is a joint federal-state entitlement program that funds health care for millions of low-income and disabled Americans. As a percentage of state spending, Medicaid is beginning to eclipse the other major budget component: education. The Bush Administration is widely anticipated to take on the ballooning costs of Medicaid in 2005. There’s been some talk about making Medicaid into a block grant program. This creates problems for states if Medicaid enrollments unexpectedly rise.
What the Bush Administration is really trying to do is address the massive deficit. Medicaid needs reform, absolutely. But there are other factors that need to be considered. Many states pay exorbitantly high reimbursement rates for prescription drugs. And don’t even get me started on payments to nursing homes. In FY 2003, $45 billion in Medicaid dollars were spent on nursing home care versus $4 billion in community-based services. If states could summon the political will to take on the nursing home lobby, it could result in huge savings for their Medicaid budgets. The role of perpetual institutional bias in our public health care programs needs to be acknowledged if we are really serious about controlling costs.
By the way, Medicare, a 100% federally funded program, doesn’t cover long-term care. In about ten years, that issue is going to reach a boiling point when all the boomers start clamoring for in-home care and state Medicaid funds won’t even come close to meeting the demand.
A word about my linking policy. Sometimes I link to sites that require registration, most notably the New York Times. I agree that site registration is an odious practice that raises privacy issues and inhibits the free flow of information. Whenever possible, I try to link to websites that don’t require registration. However, sometimes I find something interesting on one of the sites that require registration. You have a few options in this situation. You can register with the site or simply skip the article. Or you can use something like BugMeNot, which provides usernames and passwords for registration-only sites. If you have problems accessing a link, send me an e-mail and I’ll try to help. And, of course, if you have a link that you’d like me to consider posting, send that as well.
My brother and I wimped out on our LOTR marathon. Instead, we’ve been doing one chapter each day. Tonight, I think we’ll get to the third (and longest) chapter.
The devastation left in the wake of yesterday’s tsunami is staggering. Twenty-two thousand people dead and still counting. Someone (a tourist, from the looks of it) took some amazing pictures of the wave crashing into the island of Phuket, off the coast of Thailand. The NYT points out that some deaths might have been avoided if countries ringing the Indian Ocean had established an early-warning system like the one that exists in the Pacific. Most of these nations probably don’t have a lot of spare cash for that sort of thing, but let’s hope the world community chips so that the next time something like this happens, people in the affected areas will have a better chance of survival.
Today, I think my brother and I are going to try watching all three extended versions of the Lord of the Rings trilogy. I’m not sure we’ll get through the whole thing in one setting, but we’re up for the challenge. The IV bags and condom catheters are ready to be hooked up, ensuring that neither one of us will have to leave their seats for the next ten hours. Wish us luck.
This seemed to be the year of the Duplicate Gift. My sister gave me the Return of the King DVD, which I had already bought for myself. And both my brother and one of my nurses bought me the same book. I’m not sure I’m brave enough to fight the post-Christmas crowds tomorrow. That might wait until Monday.
My family and I went to see The Aviator tonight. Most of what I knew about Howard Hughes came mostly through reading James Ellroy novels, which tended to emphasize his more bizarre attributes. I wasn’t as familiar with his role in developing commercial aviation. Leonardo DiCapprio does a fine job, but his youthful features make it difficult for him to age believably in a movie that is supposed to span twenty years.
I’m all about spreading the holiday cheer. So as some of you are sitting down to feast on your Christmas goose, keep in mind that an asteroid designated 2004 MN4 may collide with the Earth in 2029. Bruce Willis, your country needs you.
My brother is staying with me for the next week. In the hopes of getting in some quality fragging time while he’s here, I downloaded Half-Life 2. I’m curious to see how it will run on my mid-range system.
As someone who is the product of an interfaith marriage, I appreciate the OC’s contribution the holiday lexicon: Chrismukkah. Even though I’m a Bright and don’t have much attachment to any of the winter holidays, I do have a string of lights hung up in my living room. For me, it’s more about marking the passage of time. This year is coming to a close and a new one will soon begin. I think it’s more than appropriate to take a little time out from the banalities of life, hang out with people close to you, and indulge in your chosen version of merry-making. To paraphrase Scrooge, you keep the season your way and I’ll keep it in mine.
I got a phone call from my sister a little while ago, who breathlessly informed me that she received an acceptance letter from William Mitchell College of Law. A big congratulations to her. I’ll have to begin teaching her the secret handshake. And I should start arranging the requisite midnight initiation rites. Let’s see, where did I put that ceremonial blade? And does anybody know where I can buy a goat for cheap?
I’ve been following the recount of the governor’s race in Washington and tonight it looks like the Democratic candidate will pull out a win after a month of recounts. Of course, the Republicans are not ready to concede defeat. It’s kind of funny to hear GOPers suddenly clamoring for every vote to be counted. I’m happy someone from my team won, but this is also further evidence that our election system still needs a lot of fine-tuning. There is still too much potential for voters to become disenfranchised because of human error. We can probably never make the system perfect (at least not until the machines take over), but there’s still vast room for improvement.
Winter sucks. It was in the single digits all day today and, of course, I had to run from location to location for meetings. I know my feet are still attached, but I can’t really feel them at the moment. I need to bug my travel agent about Vegas again. Or maybe I should go back to Miami and find that cute Latina with whom I had dinner last time.
This has to be one of the strangest disability-related stories I’ve read. A porn actress, married to a man with spina bifida, allegedly tried to help him commit suicide. She was put on trial in the UK for aiding and abetting the suicide attempt. Today, the court found her not guilty. She apparently sent her husband a text message days before the suicide attempt that read “Why don’t you get on with it. It would make a lot of people happier.” I’m betting this probably wasn’t the healthiest of relationships. And apparently this guy appeared in films with his wife. I wonder if he needs a stand-in.
Whenever I have a day where I’m struggling to find a blog topic, something usually turns up in my web searches. Like this article in the NYT discussing a movement to see autism not as a disability (registration required; just deal) but as another type of brain wiring that doesn’t require a cure. Their contention is that society is too eager to force people with autism to conform to accepted norms of behavior. Instead of tolerating the characteristics that make people with autism unique, we want them to act like everyone else. As the article points out, this attitude mirrors those of other groups who object to attempts to define them as sick or defective. Deaf culture is the most obvious example. Analogies could also be drawn to the gay community and the repulsive efforts to “cure” them. Many in the disability community would sympathize with the arguments made by the people quoted in the article. I’ve often said that it’s not my disability that poses the most problems for me; it’s the attitudes and preconceptions others have about my disability. And those attitudes (or, to be more accurate, ignorance) throw up all kinds of barriers, both physical and interpersonal. I’m not saying that the concerns of parents and families should be ignored. If I was the parent of a kid who screamed like a banshee because of the fluorescent lights in the grocery store, I’d be freaking out a little bit too. But I still think we need to balance those concerns with a heightened tolerance, maybe even appreciation for, the singular personalities of people with autism and their unique perspectives of the world
