Mar 112004
 

I’ll be curious to see how much attention Americans will give to the bombings that killed so many in Madrid today. Americans are kind of pre-Copernican in their worldview; we assume that the rest of the world revolves around us and whatever happens here. And then we shrug our shoulders and change the channel whenever there is a human tragedy somewhere beyond our shores. Maybe it’s some weird interplay of geography and psychology. Being bounded by two oceans probably encourages our isolationist streak. I thought 9/11 would force Americans to become more engaged with the world, but that hasn’t happened. If anything, it seems that we’ve turned even more inward.
One of my work-related perks allowed me to purchase a copy of Office 2003 for only twenty bucks. I installed it earlier tonight and I’ve been messing around with it. I like the new Outlook and the little pop-up that appears when new mail arrives. And Word has a nice look to it; I’ve been using Word 2000 the last few years and it always felt kind of klunky to me. I’m not sure if all this new software will make me more productive, but it sure looks purty.

Mar 102004
 

My speech at the Minnesota Justice event was okay. Not the best one I’ve given, but people seemed to like it. Afterwards, I went out with some my friend and some of her colleagues to a local bar. I was the only man sitting at a table of six or seven women. It was one of those circumstances where it was easier (and more interesting) to simply listen to their threads of conversation. I tend to get quiet in large social gatherings. It’s mostly a matter of having a soft voice and not wanting to even try to shout to be heard, cuz it ain’t gonna happen. This probably gives people the mistaken impression that I’m some kind of wallflower. I need to invent a portable amplifier so that I can go to parties and completely dominate conversations with a whisper.

Mar 092004
 

I went to see my doctor today because I’ve been having a weird little pain in my left side. Nothing serious, but I wanted to get it checked before I left for Miami. They didn’t find anything, which I guess is good. But in the course of my checkup, various nurses and doctors and other assorted professionals had me in various states of undress. Now, I’m not a shy person. Years of being cared for by nurses and PCAs have kicked a lot of the modesty right out of me. When I stop to think about it, hundreds of people have probably seen me naked. Many of them are probably still in therapy, recovering from the trauma. If I were an exhibitionist, I’d probably be filled with a great sense of accomplishment. However, I sometimes wish I had a bit more privacy in my daily life. Everything about me is always on display. Not just my body, but my work, my interactions with friends, my compulsions, etc. I suppose it’s the price I pay to live my life, but I still crave those fleeting moments that belong only to me.
I have to give a brief speech at the U of M Law School tomorrow. It’s a recognition ceremony for students who have completed so many hours of public interest work. I never prepare for these things, so I’ll probably wing it and hope I sound like I’m making sense.

Mar 082004
 

Gizmodo points us to this article about a British high school student who built a seeing-eye robot for an incoming student who is blind. Damn, nobody built me a new wheelchair when I started the 9th grade. Ach, don’t even get me started on high school. Those four years don’t rank very high on my list of All-Time Greatest Memories. I was a complete social moron and a hopeless geek. Er, well, I guess I’m still a geek, but with a much higher social IQ. I like to think of myself as the Rico Suave of geeks.
I would totally make a move on any girl I saw wearing this. Just thought I’d mention that.

Mar 072004
 

Tonight is the premiere of the new Sopranos season. I do enjoy the show, although I was a little disappointed with the unevenness of last season. I’m looking forward to seeing how Steve Buscemi is integrated into the plot–that’s Steve Buscemi of the wood chipper in Fargo and of Mr. Pink in Reservoir Dogs. I think he’s a great actor who most people only know as “That Guy.” You know, That Guy in That Show. My only hope for this season is that they find a way to off Tony’s son. That whiny little punk annoys me.
I may have found a guest blogger to sub for me while I’m in Miami. More details soon.

Mar 062004
 

I was watching some music channel earlier tonight (no, not MTV) and they were showing music videos featuring Spanish-speaking artists. I now have just enough knowledge of Latin pop music to possibly impress a cute Latina while in Miami, should the occasion arise. “Oh, Kinky? Sure, they’re okay, but I really dig Cafe Tacuba.” You know, I really should have taken Spanish instead of five years of French. I keep waiting for the chance to use it during the a chance encounter with a beautiful Parisian, or even a French Canadian. But even if that did happen, I don’t think I remember much more than “Je m’appelle Mark” and “Zut alors!” and “Ou est la bibliotheque?” Not exactly the kind of stuff that makes women swoon. And I don’t think I’ve ever made a woman swoon using English, either.

Mar 042004
 

One reader took issue with my criticism of the state of community integration in Europe, pointing out that Stephen Hawking isn’t in a nursing home. He’s also Stephen Hawking, an important distinction. His experience is most likely not representative of all Europeans with disabilities, maybe not even all Brits. And I’m not saying that America is all that and a bag of chips when it comes to inclusion, because it’s not. But on the whole, the States are physically and programatically accessible to a greater degree than most of Europe. Emphasis on most. The UK is getting better, from what I hear.
I had a meeting at the office of my former employer, PACER Center. It was good to reconnect with all the people I know there. I love doing policy work, but sometimes I miss being in the trenches doing direct service. When I was at PACER, I did a lot of hands-on work with teens with disabilities and their families. I’m actually incorporating some of those experiences into the narrative thread of my book.

Mar 032004
 

Last night at the caucus, I’m sitting near a young woman who was acting as the caucus secretary. After the caucus, she asks me (and my nurse) to have a drink with her. Okay, I say. When we get to the bar and sit down, one of the first things she said was:
“I hate this fucking country.”
She then lists, in detail, the many reasons the good ol’ U.S. of A. has earned her spite. Our president. Our prudishness. Our crass culture. I nod my head in agreement with many of these things. She then goes on to tell me about all the time she has spent in Europe. About how Europeans are enlightened and critical thinkers. About how she never felt homesick in Europe. About how she dreams of moving there permanently.
I mention that I have a German mother and I was born in Germany.
Her face lights up like Vegas. “Then you have EU citizenship! What in the hell are you doing here?!”
Um, because if I lived in Germany or most other parts of Europe, my crippled ass would be wasting away in a nursing home.
Of course, I’m polite and I don’t say that. And I don’t tell this story to disparage anyone. But her negativity really reminded me of something; I’m glad I live in the States. I have uncles in Germany and they can’t believe someone like me owns his own home and holds a job. They tell my mom that would never happen in Germany. In terms of accessibility and community integration, Europe lags behind the States by a good decade. And so while I may passionately disagree with most of the policies of the present administration, I’m obliged to recognize that living in America has presented me and my peers with opportunities that we never would have had elsewhere. Things certainly aren’t perfect here, but I wouldn’t be doing policy work if I didn’t believe that if there is one constant in America, it’s our capacity for change.

Mar 022004
 

I just got home from the Minnesota caucuses and I’m fucking exhausted. It was interesting. I got elected to be a delegate to the county convention, so my Boston scheme is still on track. Not that there was a lot of competition for the spots anyway. But it’s a start.
Anyway, my hands are still freezing from the walk home, so me and the whole typing thing aren’t getting along too well right now. More tomorrow.