Jul 262010
 

Blogger Ben Matlin provides a commentary on today’s Morning Edition regarding the twentieth anniversary of the passage of the Americans with Disabilities Act. Ben is a Harvard graduate who also happens to have spinal muscular atrophy (note to self: e-mail Ben regarding a position in my Revolutionary Cabinet) and he writes about the pervasive discrimination he experienced growing up in a pre-ADA landscape. He also remarks on how the ADA has affected younger generations of people with disabilities:

Many young disabled people are growing up with a marvelous sense of belonging, entitlement and pride I never had.

That may be true to a point. People with disabilities who are my age and younger take it for granted that we will be able to go to school, navigate a store, or go to a movie. But the ability to participate in life’s mundanities shouldn’t gloss over the fact that most of us are still quite likely to live in poverty and social isolation. People with disabilities who manage to achieve even a modicum of economic independence are still the rare exception rather than the general rule. None of this is to say that the ADA is a failure; the recognition of a marginalized group’s right to participate in society is always worthwhile. But individual bias and fear of the other remains impervious to even the most forceful legal dictates. And two decades after the ADA’s enactment, I’m impatient for the world to catch up with my frequently calibrated expectations.

Jul 232010
 

And here I am again, embarking on another journey around the sun. My 36th year was generally a good one; I learned to care a little less about what others think of me and I settled into a career that seems to suit my temperament and talents pretty well. I took a few risks that kept life interesting. I tried to be a good friend and benefitted from the continued generosity of my friends.

One of my colleagues wistfully remarked to me that 37 is a good age to be. I’ll try to spend the next year proving her right.

Jul 222010
 

Dear Antibiotics,

Look, I really appreciate all that you did in clearing up my pneumonia. You worked your magic, just like always. But I think it’s time for you to leave my system. Because I’d really like to eat something without my innards feeling like they’re incubating the chestburster from the Alien movies. I really don’t want to sound like an ungrateful jerk, but I get crabby when my tummy is upset. So how about packing up your stuff and I’ll call you a taxi. Maybe we can do this again someday. What? Sure, I’ll friend you on Facebook. As soon as you leave.

Sincerely,

Mark

Jul 212010
 

Amazon announced yesterday that sales of e-books are outnumbering sales of hardcover books. In related news, I received a Kindle DX as an early birthday present from my much-too-generous parents. In the limited time I’ve had to use it since it arrived yesterday, I quickly grasped why it’s such a popular device. The e-ink screen is easy on the eyes and it bears a remarkable resemblance to paper. The large screen accommodates as much text as two printed pages and I don’t have to ask someone to clip the pages down or bend the binding. If I could find a way to activate the “next page” key independently, it would be nearly perfect. Still, it should last me the next few years until the color version is released. And I’ll likely be purchasing fewer hardcover books, which will probably be welcome news to my sagging shelves.

Jul 202010
 

It’s no secret that the Great Recession has forced states to make devastating cuts to health care and social services. As the Times points out, people with disabilities and the elderly are particularly vulnerable to cuts in home care and other community-based services. The people who depend on these services are now facing greater risk of hospitalization or institutionalization, which will be paid out of state coffers, thus undermining the state’s original intent to cut costs. And because of Medicaid institutional bias, states have a great deal of flexibility to cut “optional” services like home care while preserving nursing home funding.

Unfortunately, this trend of service cuts isn’t likely to improve any time soon. The recession’s lingering aftereffects are going to be a drag on state budgets for years to come. Additional federal funding for home and community-based services would certainly be welcome, but Washington’s current preoccupation with the deficit makes that scenario unlikely in the extreme. People with disabilities and their advocates will have to wage some savage political fights just to ensure a 2% cut instead of a 5% or 10% cut. That’s likely to be the case here in Minnesota, which is confronting a $5-$6 billion deficit over the next two years. The only thing that gives me any comfort is the knowledge that I would be worse off in almost any other state.

Jul 192010
 

Christopher Nolan’s explorations of the human mind and the power of memory continue in Inception, a caper movie that fuses elements of noir, action, and Jungian psychology. In a world that may be parallel to our own, technology exists to enable people to infiltrate another’s dreams and steal secrets from that person’s mind. Leonardo DiCaprio is Don Cobb, a professional “extractor” who hires himself out to corporations wishing to steal trade secrets hidden in the dreams of their rivals. Cobb is blackmailed by one corporation into a job that involves planting an idea rather than stealing one–inception.

Like a lot of movies before it (Blade Runner, The Matrix, Brazil), Inception plays with our tendency to confuse dream with reality. And the arresting imagery of the film’s dreamscapes invites the audience to do the same. But what makes this film interesting is how it constructs a dreamworld with its own internal logic and rules. The characters themselves can sound a little silly when explaining dreamworld mechanics, but those mechanics also make for a taut and engaging story. Nolan trusts the audience to keep up with him and, judging from Inception‘s great box office numbers, that trust is well-placed. If only more movies respected their audiences as much.

Jul 152010
 

The good people of the Westboro Baptist Church would like you to know that God’s divine hatred isn’t reserved just for the gays. God also hates nerds and their heathen comic book idols. No word on whether geeks are also on Yahweh’s hit list. I’m also tempted to ask whether cosplayers and furries have anything to worry about, but that would involve explaining those terms to church members, which would just upset them.

Jul 142010
 

According to this site, my writing style most closely resembles that of Margaret Atwood. I’m going to mention that fact in all my future cover letters to literary agents. Maybe then they won’t be so quick to scoff at my sf/fantasy/historical/mystery/literary thriller (complete with maps and a few hundred footnotes). If some random website comparing me to such a respected author won’t convince them of my potential, then nothing will.

Jul 132010
 

I received pretty good care while I was in the hospital, but I still was surprised at some of the grossly inefficient policies I encountered. For example, all the medical staff agreed that I should have my tracheotomy tube changed to remove a possible infection vector. The trouble was that nurses weren’t allowed to perform trach changes. The same prohibition applied to respiratory therapists. Physicians couldn’t change trach tubes unless it was an emergency. They wouldn’t allow any of my nurses to change it because they weren’t hospital employees. The only person allowed to change it was some nurse practitioner in the pediatric ICU who never materialized. Since I knew I would be discharged soon, I waited until I was home to do the procedure. It took five minutes.

I understand that hospitals have legitimate concerns about liability, but policies like the one I described result in needless delay that could impede a patient’s recovery. Furthermore, nurses already perform any number of interventions that could potentially be risky for the patient (establishing an IV, administering meds, lifting a patient). It seems odd to treat this procedure differently.