Aug 142009
 

One feature of my new entertainment system that I quite like is the ability to stream Netflix videos onto my television. Netflix offers a surprising amount of decent content that can be streamed at any time, such the original Star Trek series and both recent and older movies. The Internet being the Internet, the video can still stutter and lag at times. But when the network is free of hiccups, the video quality is almost indistinguishable from a DVD. Physical media isn’t going to be displaced for a long time, but digital delivery of video is likely to be commonplace in another five to seven years. In the meantime, I’m happy to be the future’s beta tester.

Aug 132009
 

Wired has a story about a Minneapolis flight instructor who developed hand controls that enable people with disabilities to fly small planes. The controls are still in the prototype phase, but their design seems pretty ingenious. I’d be curious to know whether able-bodied pilots take a liking to them as well. Modifications of all kinds that are originally made for accessibility purposes tend to become popular with the impairment-free crowd. These modifications can be rather obvious (think curbcuts), but nobody thinks of them until the gimps get uppity.

Aug 122009
 

As a follow-up to yesterday’s post, here’s Guardian columnist Hugh Muir commenting on the ridiculous IBD editorial that warned about the hazards of the U.K.’s national health care system to Stephen Hawking’s mortality:

We say his life is far from worthless, as they do at Addenbrooke’s hospital, Cambridge, where Professor Hawking, who has motor neurone disease, was treated for chest problems in April. As indeed does he. “I wouldn’t be here today if it were not for the NHS,” he told us. “I have received a large amount of high-quality treatment without which I would not have survived.” Something here is worthless. And it’s not him.

I propose that when Hawking and I enter the ring for our Stellar Smackdown (trademark pending), we both wear T-shirts with the words THIS FIGHT MADE POSSIBLE BY GOVERNMENT HEALTH CARE emblazoned across the front and back. We’ll set up a web storefront to sell hoodies and tank tops that bear the same logo. Our clothing line will become the hottest thing since the trucker hat. Before long, celebrities will appear on PerezHilton wearing our stuff. And that’s how we’ll market socialized medicine to the American people. Watch and learn, Democrats.

Aug 112009
 

The forces opposed to health care reform have been test-marketing a new and rather strange argument over the last few days. The argument goes like this: people with disabilities will be worse off if health care reform passes because the evil government bureaucrats will decide that our lives are not worth the expense. Sarah Palin, conservatism’s beacon of intellectual honesty, claims that her son Trig (who has Down’s Syndrome) would have to come before a government “death panel” that would decide whether he can continue to receive medical care. An editorial in the conservative Investor’s Business Daily opines that Stephen Hawking “wouldn’t have a chance in the U.K., where the National Health Service would say the life of this brilliant man, because of his physical handicaps, is essentially worthless.

As just about every other rational blogger has pointed out, the fact that Hawking continues to live and work in the U.K. and is not living in mortal fear of syringe-wielding bureaucrats would indicate the editorial is unadulterated bullshit.

But there’s something more going on here. Conservatives love to pretend they’re the disability community’s knights in shining armor when it suits their political purposes. In years past, they tried to co-opt us in the abortion debate by making both subtle and explicit claims that every gimp would be snuffed out in the womb were it not for them staying the liberals’ murderous hand. The right has now adapted the tactic to the health care debate, portraying themselves as the defenders and protectors of us meek and vulnerable cripples who dwell in the shadow of a tyrannical and cruel government.

I won’t win any Pulitzers for this sentence, but they can take their false magnanimity and go fuck themselves. Here’s how well the current health care system has worked for me. My parents hit the lifetime cap on their insurance policy because of my multiple hospitalizations as a kid. If not for the fortuitous enactment of a state law that allowed parents to buy into Medicaid, my parents would have either had to impoverish themselves or surrender custody of me to ensure I received the intensive care I needed. If I tried to buy individual coverage now, every private insurer would laugh in my face. My employer-based insurance won’t cover my nursing care (unless I’m hospitalized and I need a nurse to train the hospital staff on comprehending my gimp accent).

The only reason I’m able to live a life with any measure of dignity or independence is because of a government health plan. Millions of people with disabilities don’t even have access to that, what with states slashing Medicaid budgets. The current system forces most people with disabilities to live at the economic margins to receive medical care and those safety nets are badly frayed.

We need health care reform. I need it. Trig needs it. Kids and adults with every kind of disability need it.

What we don’t need is a bunch of screeching ideologues attempting to cynically exploit us for purposes of maintaining the status quo.

Aug 102009
 

I came across an interesting tidbit as I was getting my gaming news fix. The creators of the forthcoming Half-Life Episode 3 (for the uninitiated, Half-Life is a popular shoot-’em-up) have revealed that the game may include a deaf character. According to the article, the game’s designers are studying sign language and developing technology that will accurately render signing in the game.

It’s encouraging to see that videogame makers are cognizant of deaf people’s existence and are taking the time to include them in their games. As games grow in both scope and sophistication, they can and should include a cast of characters who reflect the dizzying gamut of human identities and experiences.

Aug 092009
 

Living in a downtown high-rise has certain advantages. No lawns to mow. No driveways to shovel. Plenty to see and do within walking distance. But then there are the drawbacks. Like the building’s fire alarm going off at 2:30 in the morning for no apparent reason. It seemed to go on for at least a half hour, although that might have been an exaggeration of my sleep-deprived brain. I’m not sure what I would have done if the building had truly been on fire. I’m imagining my nurse dragging my naked body feet-first down nineteen flights of stairs and getting trampled by other oblivious and frightened residents. I think I might decide instead to stuff wet towels under the door and hope things turn out for the best.

Aug 082009
 

Nick Dupree reminds us that, in many states, people who are ventilator-dependent continue to be forced into institutions when they turn 21. It’s a grim reminder that health care reform should (but probably won’t) include a uniform set of Medicaid home care services that all states must make available to people with disabilities. Poorer states could receive a helping hand from the feds via an enhanced matching rate or perhaps even full federal funding of these services. It’s absurd that someone should be threatened with institutionalization just as they are approaching the threshold of adulthood.

It’s also worth noting that Nick has spent the past eleven months in a New York facility while he awaits approval for home care services. The longest I’ve spent in a hospital setting is three months, so I can only imagine the levels of stir-craziness he’s enduring. Here’s hoping that Nick can soon make his escape and begin a life of independence and discovery in Gotham.

Aug 072009
 

Here are the results of my attempt to insert myself into the Mad Men universe. I know that it doesn’t quite look like me, but the website didn’t offer a big-ass wheelchair or a ventilator as accessories, so I had to work with what they had. Now that I think about it, I suppose the vent would have to be some retro affair with lots of vacuum tubes and diodes. I do think the newspaper and pipe, combined with the honeymoon suite setting, give me a certain IBM-geek-after-dark allure. Don’t you agree?

Aug 062009
 

Let us bow our heads for a moment in memory of John Hughes. When future historians attempt to analyze the phenomenon of the Reagan Era teenager, his films will be mandatory viewing. Hughes’ characters could be shallow, materialistic preppies, but they freely recognized their own shallowness and materialism. But the world was probably going to blow up anyway, so why spend too much time thinking about what a jerk you are? Cue the Simple Minds and let’s turn the school library into a dancehall.

For a more trenchant analysis of Hughes’ oeuvre, I highly recommend my friend Adam Wahlberg’s 2008 MSNBC article.

Aug 052009
 

Watch this brilliant economist try to scare CNN viewers with these ominous words:
[J]ust wait till you see Medicare, Medicaid … done by the government.

I happened to be paying very close attention on the day we talked about Medicaid in law school and I’m pretty certain it’s a government-run program. And the fact that I’m alive, living at home, and not lying in my own filth tells me the government is doing something right.
There are plenty of legitimate criticisms to be directed against the health care legislation pending in Congress. It may not do enough to reduce skyrocketing costs. Its proposed financing mechanisms are gimmicky. It’s a giveaway to private insurers. But listening to most Republicans talk about health care is a depressing and wearisome experience. Whatever basic understanding they have of the policy issues involved is completely overwhelmed by their all-consuming fear of government.