Jul 152009
 

Health care reform reached a significant milestone today when the Senate Health, Education, Labor, and Pensions Committee passed a bill that includes a universal mandate for everyone to be insured, a strong public plan, and government subsidies to assist families with modest incomes to purchase coverage. While this is an important step, I fear that the Senate is currently Public Enemy #1 when it comes to meaningful health care reform. Ryan Powers writes a forceful post illustrating the Senate’s long history of obstructing progressive legislation. The Senate operates in a weird parallel universe where majority rule isn’t good enough. Instead, a super-duper majority of 60 senators is needed to pass most major legislation. Why? Because tradition demands it. Even though the Constitution says nothing about super-duper majorities, the Senate prefers to observe decorum rather than actually, you know, pass legislation.

For health care reform to attract 60 votes, it will have to be watered down to appease so-called moderates who can’t quite bring themselves to confront the true extent of our existing system’s fucked-upness. I’m starting to think that real reform can only be accomplished through the reconciliation process, which only requires a simple majority. And the Obama administration seems to be similarly inclined.

Jul 142009
 

Add this to the “plus” column of having a severe physical disability: I get to avoid the more unpleasant household chores. My shower recently had a clogged drain and one of my nurses kindly offered to clean it out for me. Similarly, I have never scrubbed a toilet or washed a pile of crusty dishes. And I’m not ashamed to declare that I don’t feel like I’m missing out by not being able to perform these tasks. They strike me as both boring and more than a little disgusting. I am, however, happy to supervise from a suitable location such as my computer desk or the general vicinity of the television.

Jul 132009
 

Computer engineers are warning that neural interfaces, like the kind that will eventually control wheelchairs and computers, could be vulnerable to malicious hacks in the future. Great. So a few years from now, I shouldn’t be surprised when some geek hired by the Russian mafia hijacks my neural chip to download credit card numbers. This is why I’m going to demand that my chip run on Linux. The last thing I want is to be turned into a living spambot because Microsoft couldn’t be bothered to patch a Windows vulnerability.

Jul 122009
 

I enjoy reading about forthcoming books that I will buy and get around to a year or two later, so I was perusing this Millions preview of fall releases when I received a happy surprise. Jonathan Lethem has a new book coming out called Chronic City. I’ve been a fan of Lethem since devouring his coming-of-age epic Fortress of Solitude a few years ago. Even better, Chronic City is based on the terrific short story “Lostronaut“, one of the few New Yorker fiction pieces I bothered to actually read. I might have to find a way to sneak this into my book club’s suggestion box in the next few months.

Jul 112009
 

I’m so bummed that I don’t live near Trafalgar Square and therefore can’t participate in the One & Other project. One & Other is a public art exhibit that invites people to sign up for an hour to occupy the top of the Fourth Plinth, an empty space typically reserved for commissioned statues. I would totally make the perfect living statue, don’t you think? I have the whole not moving thing down cold.

For those wheelchair users who are considering signing up for a slot on the Plinth, the organizers have assured that it is fully accessible. You can also watch streaming video of the project here.

Jul 102009
 

Susannah Breslin, a writer and blogger who did much to bring attention to The 19th Floor back when I was still a fresh-faced n00b in the blogosphere, has a great interview up on BoingBoing with Sarah Scott, who blogs about life with a spinal cord injury. Here’s a snip from the interview:

SB: Why do you blog?

SS: I started blogging for a few reasons. I was desperately lonely and going through all these sort of insane experiences that no one could understand, and I was desperate to be able to explain them in such a way that people would be able to understand without reverting to all the chair stereotypes that I was just a bitter, mean, crazy person now. There were a lot of people in my life that didn’t make the transition to be able to see me first and the chair second, and it was heartbreaking. I thought online I could control things in such a way that people would see me again. In the beginning, it was very much about control.

As things have evolved, I started to ease up on that obsessive level of control and start showing the darkness too. It turned out to be hugely therapeutic for me, and I hope that it humanized me for a lot of people as well. More than anything, I want people to see me as a person and not as an object of pity or otherwise. My story is really about grief and catastrophic change, and I think most people at one time or another in their lives can relate to that.

Sarah’s blog, mayday productions, contains some lovely examples of her photography as well as some sharp and honest writing about coping with the clueless and the cruel. I’ve added Sarah’s blog to my feed list and I look forward to reading her on a regular basis. And big kudos to Susannah for continuing efforts to bring attention to the work of bloggers with disabilities.

Jul 092009
 

I caught a glimpse of myself in the mirror the other and noticed that I have this furrow between my eyebrows. I’m calling it the “WTF” wrinkle because it makes me look like I’m in a perpetual state of irritated puzzlement. My life is fairly uncomplicated, which leaves me wondering how I ended up with worry lines at age 35. Perhaps it’s the cumulative effects of the radiation from my computer monitor. It can’t be because I’m getting old, can it? Maybe it will go away if I make a conscious effort to keep my eyebrows raised all day starting now.

Jul 082009
 

About ten years ago, I contemplated a move to California. I had a possible job lead and I liked the idea of never experiencing subzero windchills ever again. But now that California has revealed itself to be a political and economic basket case, I’m kind of glad I stayed away. The state’s budget woes are hitting people with disabilities hard, prompting protests and sit-ins. I’m no fan of my governor, but at least he’s not suggesting that my nurses and I get fingerprinted as a fraud mitigation measure.

California doesn’t have a fraud problem. It has a structural deficit problem. Minnesota is in a similar boat and is only one more anti-tax governor away from having to issue its own I.O.U.s.

Thanks to Scott for the tip.

Jul 072009
 

Computers are still too complicated. I just helped one of my nurses remove a nasty and tenacious bit of spyware, but only after several scans with an antispyware program. It finally fled the scene, but there’s no way my nurse could have identified those pop-up messages as spyware and downloaded the appropriate removal software without my intervention. Windows didn’t provide any helpful dialog box telling her “Hey, this is spyware and here’s how you remove it.” More importantly, her web browser allowed her to click on the link that downloaded the spyware in the first place. I’m certainly not expecting Windows (Vista, in this case) to have air-tight security, but it should spend less time freaking out when a new program is installed and more time focusing on real security threats.

Computers are great at scaling up to a user’s sophistication, but they still suck hard when it comes to holding the hands of users who don’t have the time or the inclination to become sophisticated.

Jul 062009
 

My e-mail management technique over the years has left a lot to be desired. Ever since I completely switched over to Gmail, my inbox has gradually swollen in size because I was too lazy to do anything with all those e-mails that, for one reason or another, I wanted to preserve. My inbox’s clutter finally started to annoy me, so I spent a couple hours sorting and archiving 1,000+ messages. My inbox is now completely empty; a null void of nothingness. It’s actually a little unnerving.

As I was going through all those e-mails, I noticed that I had failed to respond to a few people. If you’re still waiting for a reply to that e-mail you sent me in 2006, you might want to send it again. My response time should significantly decrease, at least until my inbox starts filling up again.