Nov 012008
Here’s another blog you should add to your feed list: Schuyler’s Monster. Schuyler is a lovely 8-year-old girl who has bilateral perisylvian polymicrogyria, a rare neurological condition that renders her unable to speak but able to comprehend the speech of others. Her father, Robert Rummel-Hudson, blogs about his fears and hopes for his daughter, which are also expressed in his recently published book of the same name. Whether he’s decrying the injustice of his daughter’s forced silence or sharing his joy when Schuyler brings home a good report card, Robert comes across as both a strong advocate and loving father. And through him, we get to know Schuyler, who strikes me as a very cool little girl.
Thank you very much Marc. I’ve read just one entry, the latest I think, and it moved me a lot.
One would like to comfort the father and the daughter, by saying these words a friend-philosopher Herman De Dijn (who’ll soon teach American students at Harvard, about Spinoza)said last night at our dinner table facing the north sea:
“Everything in the world is so imperfect, and in everybody’s life a lot of things go wrong,but the thing is…it appears to have to be like that.”
He may have used different words, I can’t put it as perfectly as he did, but then he is a very great philosopher, probably the greatest in Belgium.