Jun 232004
 

Mattie Stepanek, child author of Heartsongs and its many sequels, died today. Whatever you may have thought of his poetry, the kid had a lot of heart. He accomplished what most writers only dream of, getting his work published and read by millions of people. And along the way, he got to hang with Oprah and Jimmy Carter. Mattie made his mark on the world and he will be remembered by others, which I think is the most any of us can hope for.
Jeri Ryan was the only reason I watched Star Trek: Voyager (some of you may be noticing that my viewing choices are easily swayed by a pretty face). Divorce papers recently made public indicate that her Jack Ryan, her ex, a millionaire running for the Senate in Illinois, wasn’t content to simply show her off at the restaurants and country clubs. He took the whole concept of public displays of affection to an extreme, taking his wife to sex clubs and asking for a little nookie in front of the other patrons. I’m relieved to know that not all Republicans are sexless cyborgs like Cheney. People should get as freaky as they want, assuming the other party is welcoming of said freakiness. The Democratic candidate (Barack Obama, my favorite person to watch in this election cycle) is too classy to make an issue of this, but the GOP morality police (I’m looking at you, DeLay) will would be well-advised to tone down their “family values” diatribes.

Jun 222004
 

Poker is suddenly everywhere. Poker tournaments on television, books on improving your poker, people blogging about poker. It seems like every white male ages 18-35 is suddenly a poker freak. I’ve never gotten into cards much, although I did manage to win about $60 at blackjack on my one and only visit to an Indian casino back in Green Bay. I think I’d like poker, though. It has an interesting mixture of luck, strategy and psychology that I think I’d find appealing. The guy with whom I clerked had a regular game going. Maybe he’d let me in sometime. I’d just have to make sure the nurse holding my cards doesn’t have any revealing “tells” that would give my hand away.
Another hostage in Iraq killed. You have to wonder how many more contractors will die before companies decide that it’s just not worth it and pull out. I think the Defense Department made a big mistake when they contracted out most of the rebuilding of Iraq. It may have been cheaper, but you have civilians living and working in what is essentially still a combat zone. Most of them have no security training and are easy targets for roving militants. But I guess that train has already left the station.

Jun 212004
 

It never fails. Every six months I have to fill out paperwork to demonstrate that I am still eligible for Medical Assistance. And 50% of the time, Hennepin County manages to foul things up. I got a letter from them today saying they never received my documentation. Damn bureaucrats. Er, not that there’s anything wrong with bureaucrats per se. I hear some of them are quite capable.
Isaac Asimov included the concept of a “neural whip” in some of his books. The basic concept of the whip was that it was a kind of mob control device; you simply pointed it at a person and it would inflict severe pain sensations throughout the individual’s nervous system. Looks like someone in the military liked Asimov’s idea so much that they decided to build the real thing. We can probably expect to see it deployed in Iraq by the end of the year, giving the Iraqi people another reason to love us.
Today marks the summer solstice. Show of hands: how many of you were at Stonehenge at 3 a.m. this morning to celebrate? Nobody? How disappointing. It’s a bit discouraging to know that after today, the nights are only going to get longer. The bright mornings make it so much easier to wake up.

Jun 202004
 

The Sunday New York Times has a long article about advances in fetal genetic testing and how more expecting parents are confronted with the option of terminating a pregnancy rather than having a child with a disability. I am pro-choice and I think the decision to have an abortion is always an intensely personal one, no matter the reason. Genetic screening will one day bring us to a point where it is exceedingly rare for a child to be born with a congenital disability. I don’t see that as a good or bad thing; simply inevitable. I do think that many people underestimate the quality of a life that can be had with a disability, but I don’t think anyone should be condemned for choosing not to raise a child with a disability. Lots of people in the disability community will disagree with me on this point and will say that every pregnancy that is terminated because of genetic screening further devalues the disability community as a whole. That’s hyperbole in my eyes. My existence isn’t cheapened by the private decision of a stranger. And disability as a facet of human experience isn’t going away anytime soon. My life as a person with a disability turned out surprisingly well, but each circumstance is unique and some families may be better off not putting themselves to that test.

Jun 192004
 

On Monday morning in the Mojave desert, an extraordinary thing may happen. A privately funded, privately manned vehicle will be attempt to ascend to 65 miles above Earth, the threshold of space. SpaceShipOne is part of a larger effort to privatize space exploration. Motivated by the X Prize (given to the first team that can launch a crew of three into space in the same machine twice in two weeks’ time), several teams are working to show that spaceflight is not the exclusive domain of governments. This might be the kind of thing that finally gives NASA a kick in the ass. If space is ever going to be accessible to more than a few dozen people, corporate interests have to see that people and goods can be ferried into space cheaply and easily. Of course, an even better technology for getting into orbit, the space elevator, lies on the horizon. I may never get my space station, but maybe by the time I retire I can take a vacation at an orbiting Holiday Inn.

Jun 182004
 

A few weeks ago, I managed to get a real live literary agent to look at my manuscript-in-progress. The agent e-mailed me back yesterday and told me she didn’t find the material “compelling.” I wasn’t terribly shocked or dismayed. The book is only half-complete and still needs a lot of polishing. And maybe the story is the kind of thing that won’t grab everyone’s interest. I won’t have a good sense of that until I show it to a few more people. But my gut sense is that it’s interesting enough to keep writing, and so I will. I’ll keep everyone posted on the many, many rejections that are still to come.
My sister is back from Europe and is staying with me for a few days. She brought me a tres chic black T-shirt from the Cannes Film Festival and a few other trinkets. I was asking about accessibility in Paris. She said that the only accessible Metro station was at St. Michel in the Latin Quarter. The rest have stairs and apparently many have a distinct odor of “bum piss.” Her words, not mine. She also said she only saw a handful of people with visible disabilities on the streets of Paris. Does anyone know if the EU has a department that deals with disability issues? Just curious. I suppose I can look myself. I’d be interested in seeing what sort of disability-related statistics are being collected over there in terms of population, household income, and so forth.

Jun 172004
 

Neal Pollack wrote a funny (and kind of scary) piece about Bush and his ties to fundie Christian end-timers. Nothing really new here, but Pollack’s outrage and incredulity at the Christian right’s near lunacy makes for an entertaining read. I don’t pretend to and probably never will understand the fundamentalist mindset, no matter what religion. I’ve argued with some of my fundie friends that it all comes down to our internal wiring. Some of may simply be born with our Need for External Authority dials turned up to 11 while others manage to live with a certain degree of uncertainty and ambiguity in our lives.
Here are my pictures from the train yesterday. It doesn’t officially open until June 26, but I sit on the Mayor’s disability advisory committee, so we got a sneak peak. The Hiawatha line runs from downtown Minneapolis to Fort Snelling, about 10-15 miles south of here. In December, it will extend to the airport and the accursed Mall of America. The ride itself was very smooth and it’s surprisingly accessible. Each car has four reserved spots for wheelchairs and the gaps between the platform and the train are almost imperceptible. It’s frustrating that the train doesn’t go into St. Paul or even some of the suburbs. I’d gladly give up my car for the train if it was practical.

Me on the train.

A view of one of the stations near Lake Street.

Here you can see the exterior of the train.

Jun 162004
 

Saw the Beastie Boys on Letterman last night. I’m not the biggest Beastie fan, but I like some of their songs; a few of which I’ve *cough* borrowed *cough* from friends on the Internet. They did an interesting trick last night with what appeared to be a SteadiCam rolling down the street in front of them. Would have made a good video.
This guy is on a mission to read 52 books in 52 weeks. I admire his resolve, but I’m not sure it’s the quantity of the reading as the quality of the experience that’s important. Is devouring a book in seven days more worthy than reading it at a more leisurely 14 days. I read at a pretty fast clip, but I’ll admit that the books keep piling up around my living room. Part of the problem is that I tend to read a lot of stuff on the internet. News aggregators and RSS are great inventions, but they can be like brain crack for someone like me. So lately I’ve been making a conscious effort to get away from the computer after a reasonable amount of time so that I can devote some to words on paper. And even then, I have to keep up with the five or six magazines I subscribe to. Sigh. Nancy Kress wrote a novel called Beggars in Spain about people who were genetically modified so that they didn’t require sleep. I wish someone would hurry up and design a pill that can delete the sleep function encoded in our brains. I’ve got stuff to do, damnit.
I had the opportunity to get a sneak peak ride on Minneapolis’s new light rail train today. Pictures are forthcoming.

Jun 152004
 

It’s not as sexy as the recent Mars Rovers expedition, but the Cassini probe is taking some fascinating pictures of Phoebe, one of Saturn’s moons. It looks like the last couple of millennia haven’t been too kind on Phoebe. This picture makes the moon look like a potato that somebody took a bite out of. These pictures stir up my old longings to be an astronaut. I remember thinking how way cool it would be to float in zero-g, to escape the confines of gravity and flip a few somersaults. If I had a few extra trillion, I’d build a big ol’ space station for all my fellow crips. No more having to worry about stairs or curb cuts or broken-down elevators or bulky wheelchairs. We’d all just glide around and play zero-g versions of basketball and rugby. And we would sometimes take a few minutes to drift up to the observation deck to look at the Earth and ask ourselves why we didn’t leave sooner.

Jun 142004
 

RealNetworks and Starz are launching a movie downloading service for people with broadband internet access. I think it’s great that more media distribution is being done over the Web, but I’m not sure people will pay to watch movies on their computer screens. It’s not like music, where you can play it and then walk away. You’re chained to a desk and sitting in a position that doesn’t lend itself to extended inactivity. I’d prefer to be able to kick back and watch a film on my 31″ JVC with surround sound than on my 19″ monitor. And it’s even less ideal on a notebook computer. But maybe I’ll give it a try to see what the selection is like and how they handle technical issues like image resolution. I have a feeling it’s something crappy like 640×480, but maybe I’ll be pleasantly surprised.
Bob Herbert wrote this NYT editorial about recent Medicaid cuts in Mississippi (registration req’d). No, “cuts” is being charitable. More like “gutting.” Almost 65,000 elderly and people with disabilities could lose their health care. People with Alzheimer’s and CP and quadriplegia. And what’s Governor Haley Barbour’s rationale for these draconian measures? He says that taxpayers in Mississippi shouldn’t have to “pay for free health care for people who can work and take care of themselves and just choose not to.”
I give you the bold new future of compassionate conservatism, ladies and gentlemen, where even those on their deathbeds will be expected to get off their lazy asses and flip a burger or two. Of course, it must be stated that Mississippi expanded Medicaid eligibility in the booming 90’s and now lacks the will to raise revenues to keep those benefits intact. It still amazes me how we treat health care like a commodity in this country. It’s not something you can give and take away like a child’s toy. Idiots.