Jan 212004
 

Tomorrow it’s supposed to be ridiculously cold around here. And of course, I have to run between two or three meetings at different locations. You would think that having lived in the Midwest almost my entire life, I’d be accustomed to Arctic blasts. But I still think they suck. I hate having to go through the whole bother of getting dressed for outside and how it takes a good half hour for sensation to return to my fingertips. When I was a kid, my parents would insist on wrapping my legs in a blanket on days like this. This didn’t go over well once I became a teenager. “No, Mom, not the blankey! Anything but the blankey!”
Rumors are going around the geek sites that Star Trek: Enterprise might be canceled. My reaction? Eh. I like Star Trek as much as the next nerd, but I think the franchise needs to be put to rest for a good long while. I’ve been watching the first couple seasons of Babylon 5 and I think Straczynski was on to something with the idea of a five-year story arc. Genre shows shouldn’t be allowed to go on just for the sake of squeezing every last bit of profit out of them. About the only thing I’ll miss in this series is that hot Vulcan woman. What can I say? Give me a little eye candy in my television and I’m a happy guy.

Jan 202004
 

The Iowa caucus results didn’t completely surprise me, but I was a little shocked at how badly Dean performed. The more I observe him, the more doubts I have. Did anyone see the speech he gave last night? It was a geography lesson and not much else. We know where the primaries are, Howard. How about some substance? Kerry and Edwards delivered solid speeches outlining their ideas and policies. Dean screamed like a football coach at a pep rally.
I had a friend review my book manuscript and she gave me some great feedback. It’s a relief to know that this story is interesting to someone else besides me.

Jan 192004
 

Some of the British papers are running a story about Stephen Hawking possibly being the victim of physical abuse inflicted by someone close to him. If this story is true, it wouldn’t completely surprise me. People with disabilities are easy targets for abuse. I’ve never been in an abusive situation myself, but I’ve known plenty of peers who have experienced abuse at the hands of a parent, spouse, or other caregiver. The situation only becomes more tragic when the abuse victim is unable to speak for him- or herself. And if you add in the social isolation that is the common denominator in the lives of many people with disabilities, you can see how many abusive situations can go on for years at a time without being discovered by anyone else. I hope that Dr. Hawking’s family and colleagues are vigorously advocating for him and monitoring his safety.
Here’s my absolutely worthless prediction for the Iowa Caucus: Dean first, followed by Kerry and then Edwards in a close third.

Jan 182004
 

Looks like Dean is in for a real nail-biter in Iowa. As one commentator has said (can’t remember who), it’s probably a good thing that the race has tightened up. It means that all of the major candidates are still being scrutinized and considered. This is, after all, the race for the Presidential nomination and nothing should be easy. At the same time, the media needs to tone down the make-or-break histrionics. The Iowa caucus has a terrible record when it comes to predicting the eventual nominee. I have a feeling that the race won’t start to shake out until mid-February at the earliest. I’ll be curious to see if Kerry and Edwards can build some momentum. Now that would be an interesting ticket.
I’m off tomorrow because of the MLK holiday. I don’t have any solid plans for the day, but it’s just nice to know that I have some extra free time. I still haven’t seen a couple of the smaller films that were released over the holidays, like House of Sand and Fog.

Jan 172004
 

Here’s another reason I will never, ever shop at Wal-Mart. They engage in the decidedly Dickensian practice of locking overnight employees in the stores with no easy way to get out in an emergency. Isn’t it interesting to note how this wildly successful company can barely conceal its contempt for its own workers?
The Hubble Telescope has fallen victim to the fallout from last year’s Columbia disaster. Pity. I really enjoy looking at the images it produces. They’re a great reminder that the daily trivialities of life aren’t terribly significant in the larger scheme of things.

Jan 162004
 

This article discusses a Dutch sex worker who services men with cognitive disabilities such as Down’s Syndrome. I’m not sure how I feel about this. I’m glad this individual recognizes that people with disabilities have sexual desires, but the article makes it sound like some of her clients are so severely disabled that they can’t express any meaningful form of consent. That concerns me. I think consent is a critical aspect of any sexual act. And what if the sex worker was a man and the clients were women? Would that change the dynamics of this transaction?
I’m also a little troubled by this quote from the article:
Obviously, only a small minority of the disabled can find suitable [sexual] partners. The others lack social skills, lack access to potential partners, aren’t intelligent enough to initiate or maintain a relationship, are physically disfigured, or cannot move. Hence the need for services of prostitutes.
Hell, lots of people without disabilities lack social skills and they still seem to find sexual partners. Having a disability shouldn’t automatically imply the need for a prostitute. I don’t have a problem with prostitution per se, but sex is just as much about intimacy as physical release. This article seems to imply that people with disabilities aren’t capable of experiencing intimacy.
Then again, what the hell do I know? The way my own love life has been stagnating, in another year or two I may be planning an extended vacation to Amsterdam.

Jan 152004
 

My little lecture today at Hamline went well. I thought about mentioning this blog to the students, but I couldn’t think of a way to do it that wouldn’t sound like a plug. I also noticed how young most of the students seemed. When the hell did I begin to feel…not young anymore? I bet none of those kids even know the lyrics to “Rio.”
This study confirms that I’m a fairly typical Internet user. I watch way less television than I used to and, of course, I read a lot. I also like to think I’m a fairly sociable person.

Jan 142004
 

Ugh. There are some days when the universe says to itself, “I’m bored. I know, let’s fuck with Mark.” Minor annoyances have been piling up in my life, both work-related and personal. Nothing serious, but enough to give me a headache. But I’m looking forward to tomorrow. I’m speaking to a class of freshmen in a social justice class at Hamline University about my personal experiences with disability. A colleague of mine teaches the class and issued the invitation to me and a few other fellow gimps. She said that if we really want to grab their attention, just talk about sex. So I have to figure out a way to weave sex into the discussion. That shouldn’t be too difficult. Heh.
Here’s yet another story about advances in brain-computer interfaces. This technology can’t come soon enough for me. My neck is killing me from all the typing I do.

Jan 132004
 

To compensate for last night’s verbose entry, I’m going to keep this short. I’ve had two killer days at work and I’m in serious need of some downtime tonight. But here’s some mildly good news: I reached page 100 in my book.
And here’s a really cool panorama of Mars. Or, if you’re of the conspiratorial persuasion, a panorama of the Nevada desert Photoshopped to look like Mars

Jan 122004
 

Yesterday’s NY Times had a great editorial about the Tennessee v. Lane case, which is scheduled to be heard by the Supreme Court tomorrow. Per the Respondent’s (Lane’s) brief, the facts are as follows:
Respondents George Lane and Beverly Jones have paraplegia and use wheelchairs to ambulate. Pet. App. 13. In 1996, petitioner charged Lane with two misdemeanor offenses and summoned him to appear in the Polk County Courthouse to answer the charges. Id. at 15-16. All court proceedings in that courthouse take place on the second floor of a building that, at that time, had no elevator. At his first appearance, Lane crawled up two flights of stairs to get to the courtroom. On his second visit, he was arrested after he “sent word to the court that he would not crawl to the courtroom again” and further declined to be carried by officers. Id. at 15. The court conducted subsequent proceedings with Lane waiting on the ground floor while his attorney shuttled back and forth between Lane and the second-floor courtroom.

Beverly Jones, another party to the case, is a court reporter who uses a wheelchair. She has been forced to decline several job assignments because many of Tennessee’s courthouses are inaccessible. Lane and Jones sued the State of Tennessee for failing to comply with Title II of the Americans with Disabilities Act (ADA). Title II requires public services and programs to be accessible to people with disabilities.
Tennessee is arguing that it cannot be sued under the ADA because the 11th Amendment of the Constitution grants it immunity from such suits. Once an obscure and often-ignored Constitutional provision, the 11th Amendment has become the weapon of choice for states’ rights advocates and so-called federalists determined to strike down what they deem as intrusive and burdensome federal laws. This tactic has met with much success in the Supreme Court. In a previous Supreme Court decision, Alabama v. Garrett, the Court ruled that state employees cannot sue the state under another provision of the ADA, Title I. States are also protected from suits under other federal anti-discrimination and environmental laws.
When I was a year or so out of law school, i interviewed for a judicial clerkship position in this little town called Mora, Minnesota. When I got to the interview, I discovered that the courtroom was inaccessible. The judge still interviewed me, but he and I both knew I wasn’t getting the job. I did get another clerkship a couple months later, but what if I lived in Mora and wanted apply for a marriage certificate? What if I was being sued? What if I was called for jury duty?
What if I wanted to vote?
In 2004, people with disabilities shouldn’t have to be litigating issues of access anymore. We shouldn’t have to keep explaining to courts how decades of discrimination and bias made a federal law like the ADA necessary. We shouldn’t have to plead for the right to be allowed into a courtroom without crawling up the steps. We shouldn’t have to ask for the opportunity to enjoy the liberties, both trivial and profound, that everyone else takes for granted.
But we do have to ask. And sometimes it makes me want to weep.