Aug 172003
 

My sister is moving in at the end of the month and staying for a few weeks before she can move in to her apartment. She just got a new notebook PC, so I think I’m gonna set up a wireless network in my condo. I’ve been looking at this router, mostly because it looks cool. if you have other suggestions, let me know. I wish my condo association would set up a hotspot on the deck. But then again, my headset doesn’t have a battery pack, so that might not work for me.
For some reason, the Sunday papers are focusing on porn today. There’s this in the NYT and this in the Atlanta Journal-Constitution (which quotes my friend Susannah). Must have something to do with the steamy August weather. I guess I’m just not sure how this is exactly news. The mainstreaming of porn culture, if not porn itself, has been going on for the last 5-8 years. It’s like all those recent articles about how comics are suddenly okay for adults to read. How long does a trend have to be a trend for the mainstream press to catch on?

Aug 162003
 

Let’s talk about sex. There, I knew that would get your attention. I’ve touched on other aspects of the disability experience in this blog, but I’ve found that sex is the one issue where people have a great deal of curiosity but little willingness to ask. So turn away if this topic makes you uncomfortable.
Sex plays out differently for everyone and it’s no different for those of us with disabilities. My own sexual awakening came rather late. Throughout my teens and most of my twenties, I was uncertain as to whether anyone would want to have sex with me. After all, having a nurse around 24-7 makes cultivating a relationship a challenging proposition. For many years, the idea of getting laid seemed about as likely as me leaping out of my chair and taking up rock-climbing. I even considered paying someone for the experience, but that idea just never felt right. I’m not opposed to prostitution per se. I think a sex industry has a valid place in modern life. But in my own case, I felt a little too vulnerable to be intimate with a stranger.
Anyway, and much to my surprise, I did get into a relationship last year. I discovered that, for me, sex is entirely within my personal realm of possibility. My particular disability doesn’t affect–ahem–functioning, so it was just a matter of finding what works and what doesn’t. For the most part, I think my girlfriend at the time was quite satisfied with my abilities. Unfortunately, the relationship ended after a few months. Whether I’ll ever find another partner, who knows? I like to think that my thirties will be a little more exciting than my twenties. But most people still tend to associate disability with asexuality or complete sexual innocence. The common perception is that we’re too sick or too incapacitated to enjoy sex. Of course, reality is something else. Some of the most sexually voracious people I know are people with disabilities. Many friends of mine married and have children. I think the whole chemistry of attraction–what draws one human being to another–is remarkably mysterious and unpredictable.
There really isn’t one way to describe Sex & The Disability Experience. There’s my story and then there are millions of others. The mechanics, the who does what to whom and how, is only a small part of the whole picture. So don’t expect me to start posting pictures or diagrams. But I will say this: there are certain myths about guys of Jewish heritage that aren’t exactly myths.
Trust me.

Aug 152003
 

More staffing problems this weekend. This is my last full week with my nursing agency and I’m anxious to get things up and running. At least I’ll have a better idea of what’s going on with the schedule. Anyone want to come to Minneapolis tomorrow and hang out with me for a few hours?
It’s been oppressively hot and humid the last couple days here. But at least we have power. Since my ventilator runs on battery for only 12 hours or so, I’d be quite screwed in a blackout. If anyone has stories about how people with disabilities were affected by the Great Northeastern Blackout of 2003, send them to me.
Blech. Need to get away from the computer…

Aug 142003
 

Napster is coming back. I remember a friend telling me about Napster back in ’99 and shrugging my shoulders. I was poor and still using dial-up and I didn’t get the appeal of waiting 20 minutes for a song to download. But then I got my clerking job and could suddenly afford broadband. I checked out Napster again and it was like trying crack for the first time. I was soon gleefully downloading songs I remembered from my youth; stuff like Cyndi Lauper and Wang Chung. And Duran Duran. Lots of Duran Duran.
I hope all my East Coast readers are safe and sound. It sounds like most people are behaving rather well; no 1970’s New York Style Blackout Looting and Rampaging. And trust the mobloggers to be all over this. I just wish mainstream media could be this spontaneous and unobtrusive.

Aug 132003
 

I managed to wrench my foot quite nicely yesterday. I was sitting at my desk at work with my leg crossed when I decided I needed to go talk to someone. Instead of backing me up, my nurse drove me into the desk and my foot got caught between the desk and a table, twisting at an interesting angle. Ouch, said I. Except it came out sounding like:
fuckfuckowbackmeupbackmeupfuckfuckow
It still twinges a little, but Coach says I can still play on game day.
One of my other nurses is considering the purchase of both a TiVo and notebook computer. I don’t think she would be getting either if not for my evil geek influence. I can think of two or three nurses who eventually bought computers after working with me for an extended period. It’s interesting to notice the subtle influence we have on each other’s lives. One nurse taught me everything I know about beer and Terry Gilliam films.

Aug 122003
 

Reading this article reminds me that I need to get out of the city sometime soon to do some stargazing. My parents have a summer home in Door County and my brother and I enjoyed some spectacular views of the Perseid showers. I have some vacation coming up at the end of the month, so maybe that will be a good time to go for a drive and find an open field somewhere.

Aug 112003
 

I just got back from two hours of walking around downtown and soliciting silent auction donations from local businesses. I’m on the Board of Directors of a small arts organization and our fundraiser is next month. It went well and I got about 5 or 6 donations. But between yesterday and today, I haven’t gotten much writing done. Since I started writing regularly, I try to do a page a day. I got a little done today, but tomorrow I need to get back on task.

Aug 102003
 

Man, I’m fried. The party went off better than I thought. I think I had about ten people show up, including a couple friends from law school who I hadn’t seen in forever. I meant to take pictures, but I got distracted and it just didn’t happen. Maybe I could have been more spontaneous if I had a digicam. Oh well, something to work on for the Second Annual Thirtieth Birthday Party. And next year, I’m expecting all of you to come.

Aug 092003
 

From The Guardian: Disabled Hero Wins Oxford Place. Hero being the name of the young woman, not a term of condescension, thankfully. It’s good to see that Oxford is willing to admit students with even the most severe disabilities. I sometimes wonder how my own life would have been different if I had come of age in the 50s or 60s instead of the end of the twentieth century. Decidedly less pleasant, I think. Even today, students with disabilities who are accepted into some of the finest institutions of higher education still have great difficulty finding employment after graduation.
I think everything is ready for my party. Food: check. Beer: check. Film for suddenly antiquated 35mm camera: check. Decent weather: hopeful.

Aug 082003
 

I need to catch up on my e-mail. Allison and Amy, you’re on my list. And a big shout-out to my friend Anna, who is apparently wasting her time reading this drivel of mine. Anna, Amy and I are proud graduates of St. Norbert College. Located on the shores of the beautiful Fox River, SNC is a fine liberal arts college with a not-so-liberal student population. That fact always seemed a little curious to me. When I got to the U of Minnesota, I remember experiencing a little culture shock because everyone was so much more…like me. Not to say that there weren’t any liberals at SNC, but I think we were a little outnumbered. Another funny fact: when I graduated from SNC in 1995, maybe one or two buildings were equipped with automatic doors. For the entire four years I was there, I relied on my fellow students to help me in and out of most of the buildings. When I came back to visit a couple years later, accessibility had dramatically improved around the entire campus. Better late than never, I guess.