Oct 122010
 

I’ve been watching the train wreck that is the Wisconsin Senate race with growing dismay. I checked the box next to Russ Feingold’s name in the 1992 election, just after I turned 18. He sent me a congratulatory note when I graduated from law school, which surprised and delighted me. And now it looks like he’ll lose to a know-nothing businessman with a lot of money and anger. Unlike a lot of Democrats up for election this year, he hasn’t tried to run away from Democratic accomplishments or give the cold shoulder to the President. It’s just bad luck that his number came up in a year when the economy has turned Wisconsin voters into frightened reactionaries. The Senate can ill afford to lose one its few truly progressive voices, considering that Bernie Sanders isn’t getting any younger.

Oct 112010
 

If Google can build a prototype car that drives itself, then they can damn well build me a robot nurse. What do you need to make this happen, Google? Money? My soul? You probably already have a working model tucked away in some closet in your Mountain View lair. How about just lending it to me and I’ll do all the beta testing? I’ll even sign a waiver indemnifying you against any claims in the event my robot nurse accidentally tears off one of my limbs or tosses me from the roof of my build in a fit of machine rage.

Oct 082010
 

It’s no secret that Governor Pawlenty isn’t a fan of health care reform. But when his ongoing refusal to even acknowledge the law’s existence starts to piss off the insurance companies, it’s a sign that he may be trying too hard. The federal government asked for states to comment on issues related to setting up the insurance exchanges that are envisioned in the law. Pawlenty wouldn’t allow those comments to be submitted, so the local health plans obtained the letter through a Data Practices Act and submitted it themselves. I have no great love for insurance companies, but at least they understand the need to actively engage in a dialogue with the federal government on the law’s implementation. Meanwhile, Pawlenty is acting like a craven politician who’s terrified that he’ll get a bad case of the pinkos if he even utters the words “Affordable Care Act.” His persistent efforts to will the law into nonexistence bear the rank smell of desperation. What’s more, the ultra-conservative activists that Pawlenty is trying impress with these shenanigans don’t show any signs of returning the love. But that won’t stop our governor from trying even harder to scrub himself clean of socialized medicine’s unAmerican taint.

Oct 072010
 

The Wired editors are on something of a disability kick this week. Today they’re running a feature on an exoskeleton device designed to help people with spinal cord injuries walk again. The article features a couple videos showing a couple folks with paraplegia testing the device. The exoskeleton is designed by a Berkeley-based firm and based their model on a similar device that was developed for the military.

It won’t be long until my cybernetic gimp army is ready to lead my revolution. I’d like to wait a little longer for the thought-controlled aerial drones to come on-line. And the sexbots. I’m going to need a whole squad of sexbots in order to effectively lead this revolution.

Oct 062010
 

Several months ago, I wrote about Ari Ne’eman, a young man with autism whose nomination to the National Council on Disability was held up because some advocates didn’t like his views on disability as a societal construct rather than a medical problem. Ne’eman finally won confirmation over the summer and he gave an extensive interview to Wired. He responds to the attacks (some of them pretty vile) that greeted his nomination and discusses the tension between people with autism and the organizations that claim to represent them (a common theme in disability circles). He also demonstrates awareness of his role as a representative for all people with disabilities, as evidenced in this response to one of the interviewer’s more clueless questions:

Wired.com: Some of your critics suggest that as a “high-functioning” person with Asperger’s syndrome, you present an overly rosy picture of life on the spectrum. You work in D.C., do a lot of public speaking and networking, and are obviously capable of things that someone who lives in a wheelchair or can’t speak cannot do.

Ne’eman: I know quite a few people in D.C. who use wheelchairs, and I know people who use AAC devices and work in public policy. Some of my mentors fall into those categories. So while I’d agree that there are many things I do that some other autistic people can’t, I wouldn’t say that it’s the fact that I’m not a wheelchair user or an AAC user that makes that the case.

I recognize that I’m fortunate in many respects and am able to do things that some other autistic people can’t do. But I would also point out that these things didn’t — and don’t now — come easily to me. I’ve been fortunate to be able to count on the inclusive culture of the broader disability-rights movement to help support me.

There’s a strange idea out there that neurodiversity advocates think that autistic life is all flowers and rainbows, but I don’t know anyone who thinks that way. Most of us have had deeply personal experiences of social isolation, bullying and abuse, lack of support, discrimination, and plenty of other problems. But it’s much more productive for us to focus on how we can improve people’s lives than to keep presenting people as pitiable burdens.

No more pity. It doesn’t help anybody.


Oct 052010
 

I’m doing a couple presentations on the Affordable Care Act over the next week and I’m tempted to include this animated explanation of health care reform produced by the Kaiser Foundation. It’s probably a little too cute for my audiences, but it does a good job of explaining how the law will change the health care system over the next few years. While some media outlets have done an admirable job of trying to explain the real-world implications of health care reform, plenty of Americans still aren’t sure exactly what it means for them. Videos like this one might not change the minds of people who oppose the legislation, but they can provide a factual framework for a debate that isn’t fueled by misinformation and distortion.

Oct 042010
 

A 15-year-old Italian boy with Duchenne’s muscular dystrophy is the first person to receive a permanent artificial heart. The device, which is only 4 centimeters long, is expected to extend the boy’s life by another 20-25 years. This is potentially big news for people who need organ transplants but have underlying health conditions that keep them off the the organ transplant lists. Let’s hope that this kid’s heart performs as expected and that artificial organs eventually become viable and affordable options for not just people with disabilities, but everyone.

Oct 012010
 

I have to wonder if the inhabitants of Gliese 851g, the newly discovered Earth-like planet in the vicinity of Libra, are speculating about the Gliese-like planet that their astronomers have just found. Or maybe they’ve known about us for a while and they’ve already dispatched a diplomatic emissary. Or an invasion fleet. Or maybe they’re just going to wait a couple hundred years to see if we can manage not to cook ourselves to death.

Sep 292010
 

Does George Lucas have nothing better to do than endlessly fiddle with the Star Wars movies? His latest recycling project involves converting all six films into 3D. The first to get the treatment will be The Phantom Menace for a 2012 release. That movie was slap in the face to most old-school fans and I don’t expect it to be any better in three dimensions. I thought Lucas wanted to go back to making small, personal films again. Perhaps some of his friends could organize an intervention and put an end to this nonsense before he starts thinking about 3-Difying the Christmas special as well.