Jun 252014
 

This short Times documentary about a couple–both of whom have muscular dystrophy–who fell in love and married is sweet and matter-of-fact. There’s just one problem: they are living in a Connecticut acute care hospital. Does Connecticut not have the resources to enable them to live together in the community? I understand that they both use ventilators, but this is 2014: people with ventilators living at home are not a rare species anymore. Of course, I don’t know what their specific circumstances are. They may choose to live at the hospital because they feel safer or because the quality of care is high. But I imagine it’s no simple matter for them to get out to a movie or restaurant. I hope somebody has at least discussed community living with them.

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