Aug 042009
 

I don’t have much time for proper blogging tonight, but via Kottke, I came across this lovely photo showing a flotilla of hot-air balloons ascending into a dawn sky over the French countryside.

The world isn’t such a bad place, is it?

Aug 032009
 

Here’s a scene of self-styled “patriots” trying to shout down Rep. Lloyd Doggett (D-TX), a supporter of health care reform, outside a grocery store.

It makes my wonkish heart go pitter-patter to see people get all excited about public plans and health insurance exchanges. But the crowd’s overwrought pitchforks-and-torches vibe negates my enthusiasm. Most of these people probably couldn’t articulate exactly why they oppose health care reform so vehemently, except to string together a few disjointed sentences that rely heavily on the words “socialism”, “France”, and “freedom”. But progressives can’t afford to dismiss these theatrics out of hand. Unruly mobs make for good television and the media are lazy enough to show videos like the one above and proclaim that Americans are strongly opposed to health care reform.

Instead, we need to call these people for what they are: unwitting lackeys of corporations and conservative ideologues who prefer the dysfunctional status quo to any alternative. But even that’s not enough. We need to keep reminding people that, under the current system, a job loss means loss of insurance. We need to remind people that, under the current system, individual policies can be rescinded, And under the current system, insurers can charge exorbitant premiums and co-pays.

Most importantly, these protesters and their masters have no serious ideas of their own to address these problems. Whatever bill gets passed will by no means be perfect. Reform is an iterative process that requires time and a healthy measure of patience. We are a nation of tinkerers and risk-takers, which makes the empty, fearful slogans and authoritarian tactics of these protesters seem all the more foreign and sadly desperate. 

Aug 022009
 

Like any other group of people, those of us with disabilities are perfectly capable of pulling stunts that are really stupid, even criminal. Take, for instance, the case of the British man with autism accused of hacking into American military networks back in 2001-2002. Gary McKinnon now faces extradition to the U.S. to stand trial. McKinnon’s family and several members of parliament contend that he is too vulnerable to be sent off to America and should instead be tried in the U.K.

As an example of society’s conflicting notions about disability and criminal justice. It’s not difficult to ascribe McKinnon’s actions to naive obsession. He claims that he was only looking for evidence of a U.F.O. coverup and had no malicious intent. But British authorities argue that his disability doesn’t exempt him from equal treatment under the extradition treaty with the U.S. I’m inclined to agree. The struggle for disability rights is the struggle for equality in both the eyes of the law and in the eyes of our fellow citizens. We do ourselves little good if, in one breath, we demand equal access to employment, education and the like but then point to our frailties and beg for pity when we don’t like the full implications of said equality.

I realize that McKinnon may not care one bit about promoting the integrity of the disability rights movement. I probably wouldn’t if I was in his situation. But when a person with a disability argues that he should receive special dispensation under the law solely because of his disability, that should be cause for alarm.

Aug 012009
 

The rat pictured above was injected with a blue food dye after having its spinal cord damaged. The dye appears to reduce the trauma of such injuries and perhaps even promotes partial healing. Take that, organic foodies.

I’m beginning to suspect that a cure for SMA will have a similar trade-off. We’ll still attract stares, but it will be because we traded our disabilities in for prehensile tails or hooves.

Jul 312009
 

Ridley Scott is on board to direct a prequel to Alien, the 1979 movie that made John Hurt’s viscera famous. Since it’s a prequel, I can only assume that every human character dies or is otherwise prevented from returning to civilized space to tell the tale (otherwise, the original movie wouldn’t make much sense). I’m not sure it’s a necessary story, but I’m intrigued nonetheless. The years have not been kind to the Alien franchise and it desperately needs to be saved from itself. Between this project and his slated adaptations of The Forever War and Brave New World, Scott could spark something of a revival for serious, well-crafted science fiction films.

Jul 302009
 

My Dear Professor Hawking:

Let me be one of the first to congratulate you on your receipt of the Presidential Medal of Freedom. It’s well-deserved, I’m sure. Please give the President my warmest regards when you see him and also inquire as to whether he has firmed up a departure date for our shuttle trip to the space station. I need a little advance notice so that I can put in my vacation request at work. Some of us don’t have the luxury of skipping town whenever the impulse strikes.

Incidentally, you might want to consider wearing your newly-acquired medal for the fight. Television audiences love their bling. And it might make you seem a little less pathetic after you crumble like a stale cookie, unable to withstand my brutal lesson in physics.

Salutations & Felicitations,
MS

Jul 292009
 

Here’s what I take away from the latest NYT/CBS poll on health care: people are quite capable of holding two completely opposing beliefs simultaneously. To wit:

In one finding, 75 percent of respondents said they were concerned that the cost of their own health care would eventually go up if the government did not create a system of providing health care for all Americans. But in another finding, 77 percent said they were concerned that the cost of health care would go up if the government did create such a system.

As a whole, Americans are deeply ambivalent of government’s ability to implement any kind of complicated social program. That’s what thirty years of conservative ideologues bashing government will get you. But once those programs are up and running, they tend to be pretty popular. Nobody talks seriously about eliminating Medicare or Social Security anymore because it would be political suicide. But we have a high tolerance for putting up with intolerable situations. As intolerable as our current health care system is, it is familiar. It’s like that beater car you once had; the one that leaked oil and pulled to the right and always needed a jump when the temperature dipped below freezing. It got you from place to place, but just barely.

If Congress can pass a decent reform bill, it could go a long way towards restoring our faith in good government. I’m just worried that decades of declining expectations for civil institutions of any kind have left us incapable of imagining something better for ourselves.

Jul 282009
 

Still waiting for that elite unit of Scandinavian nurses to arrive. I’m assuming they got held up in customs and will show up at my door before long. It had better be soon because the water for my sponge bath is getting cold.

Jul 272009
 

My body and I are on pretty familiar terms and I’ve learned to pay attention to its early-warning system. A nagging tingling in the back of my nose is the usually first sign of a cold virus taking up residence in my body. Then comes a certain lack of focus. An e-mail that would usually take me five minutes to write suddenly takes ten or fifteen. Then the sneezing begins. That sums up how things went at the office today. A sick day is in order for tomorrow, along with plenty of fluids and next month’s book club selection. Please send vitamin C tablets and an elite unit of Scandinavian nurses clad only in fishnets and silk camisoles.

Jul 262009
 

As obsessed as I am with pop culture, I really should make a point to go to Comic-Con one of these years. I’ve been catching up on the coverage from this year’s Con and it sounds like my kind of scene (although I could do without all the Twilight fanatics). It would be a memorable experience, right up to and including the moment I get bounced out of the convention hall for putting the moves on the cute brunette dressed up in the Princess Leia slave outfit. Perhaps some dreams are better left unrealized. In the meantime, I’ll have to settle for watching awesome lightbike sequence from the trailer for the upcoming Tron movie and waiting patiently for the Shepherd Book comic.