Feb 282014
 

The Arkansas legislature is currently debating whether to continue the state’s expansion of Medicaid for low-income children and adults. Since this is Arkansas, a bloc of Tea Party legislators has been blocking the extension because it might make the lives of poor people just a bit less miserable. One of the opposing legislators is Josh Miller, who also happens to be a Medicaid beneficiary because of a spinal cord injury sustained in an auto accident.

In interviews, Miller justifies his opposition to the expansion with claims that it would benefit people who don’t want to work or who want to abuse prescription drugs. He also is terribly concerned that the federal government will default on its obligations and he doesn’t want to make promises to his fellow Arkansans that can’t be kept.

People with disabilities span the political spectrum and Miller and is entitled to his opinion. But his stance that some people “deserve” assistance while others don’t is disheartening, particularly given his own experience with public assistance. He isn’t the first person with a disability who wants to protect Medicaid for people like himself, yet his position as a legislator gives him a unique opportunity to shape the programs that benefit him so extensively. It’s an opportunity I would love to have. If he chooses to use that opportunity to deny health care to 100,000 people, that’s his right. A day may come when Miller’s fellow legislators want to save money by trimming benefits for people with disabilities. If that happens, will Miller be as quick to side with his conservative brethren?

Jan 272014
 

I’ve written previously about Jillian Mercado, a fashion blogger who also uses a wheelchair. Mercado recently applied for a modeling gig on a lark, so she was more than a little surprised when she got the job. Mercado is featured in Diesel’s forthcoming ad campaign, which will run in magazines like Vogue and Interview. Here’s the photo of her and artist James Astronaut:

Mercado looks amazing and I suspect she’ll get many more gigs as a result of this campaign. More importantly, her experience is a powerful antidote to the low-expectations game that so many of us gimps play. We are often hesitant to put ourselves out there because we fear rejection and/or looking silly. But as Mercado demonstrates, sometimes just showing up leads to the completely unexpected. Now, if you’ll excuse me, I must submit my resume to Ezra Klein’s Project X.

Oct 212013
 

After using the iOS 7 switch interface for a couple weeks, I’ve gotten pretty adept at navigating various apps. But one element of app design really frustrates me. Some apps include a menu that can be brought up with a tap on the screen. Unfortunately, the menu disappears after a few seconds. Those of us who use switches don’t have enough time to activate menu items before the menu vanishes. This design flaw is prevalent in magazine and reading apps like the New Yorker and Instapaper.

From an accessibility standpoint, it would be better if menus remain visible until dismissed with another tap (the Amazon Kindle app does it right). As app designers become more cognizant of basic accessibility principles, problems like this should disappear. Komodo OpenLab, the maker of my TECLA Shield, has great resources on how to make apps more accessible.

Oct 082013
 

I ordered the new Tecla Shield DOS last week so that I could access my iPad using the switch control function in iOS 7. It arrived yesterday and I used it for a couple hours last night. Here are my initial thoughts.

Setting up the Shield couldn’t be easier. Developer Komodo OpenLabs deserves huge kudos for developing a truly plug-and-play device. It only took me a few minutes to select the proper mode on the Shield, connect my switch, and pair the Shield with my iPad. After a little fiddling with the Switch Control settings in iOS 7, I was up and running.

Apple has done an excellent job creating a switch interface that provides comprehensive control, regardless of how many switches are being used. Even with a single switch, I could open apps, scroll, flick, and perform other gestures. I could also type, albeit slowly, using the on-screen keyboard. The scanning rate and mode can be adjusted on the fly using an intuitive menu. The interface is also surprisingly smart. If I select a volume slider, the pop-up menu gives me the option to increase or decrease the volume. Well done, Apple!

The interface isn’t perfect. Some apps don’t play well with switches, particularly those with pop-up menus that don’t remain on-screen long enough to be activated by a switch. Developers will need to do a better job of designing apps that are accessible to everyone. Apple also really needs to add a word prediction function to its keyboard. I won’t be blogging from my iPad anytime soon.

I’ll post a video of me using the Shield in the next few days. Apple and Komodo OpenLabs have done a tremendous service to people with disabilities who, until now, have been excluded from the mobile computing revolution. Together, the Tecla Shield DOS and iOS 7 are a revolution in accessibility.

Sep 262013
 

A young Turk in Detroit has assembled a homemade mind-controlled flamethrower.

This is pretty much the best news I’ve heard all year. I must contact this young man and persuade him to become one of my henchmen. I’ll even offer to put him in charge of the rest of the henchmen, contingent upon me actually recruiting other henchmen.

Now, someone help me steeple my fingers so that I can do a proper evil laugh.

Sep 232013
 

Over the weekend, I experimented with the switch control function on my iPad using the built-in camera. iOS 7 allows users to activate the switch function by turning the head to the left or right. I was able to operate the iPad intermittently, but not on a consistent basis. The iPad had to be positioned in just the right spot to read my head movement and, even then, the interface could be fussy. My limited head movement probably didn’t help matters. Someone with more range of motion might have better luck using the camera. Perhaps future versions of iOS might be able to recognize more subtle gestures like eye blinks.

I just ordered the Tecla Shield, which will allow me to use an adaptive switch with the iPad. I’m expecting much better results using that method. Even though I have only been able to use the switch interface on a limited basis, I’ve been impressed with what I’ve seen so far. Apple’s accessibility team did an excellent job creating a comprehensive interface that can access all of the iPad’s functions with just a single switch. I’ll post more detailed impressions and possibly a few videos once I have the Shield up and running.

Aug 282013
 

NPR has a great story about accessible playgrounds where kids with and without disabilities can have fun together. Nothing like this existed when I was a kid and I wish it had; the playground near my childhood home was decidedly inaccessible. The article points out that accessible playgrounds are expensive to build and that parents often have to raise the necessary funds themselves. As the economy slowly improves, perhaps more municipalities will see such playgrounds as a worthy investment.

NPR is also creating a database of accessible playgrounds that is open for public contribution.

Jul 302013
 

I’m getting a new bed to replace the 20-year-old model. But this presents certain logistical problems. The equipment vendor won’t take away the old bed and I don’t have room to store it. I can probably give it away via Craigslist or donate it, but I don’t want to have a hospital bed taking up space in my living room for several days. It’s times like this when I wish I had a garage.

Jul 262013
 

The Department of Justice has filed suit against the State of Florida for warehousing kids with disabilities in nursing homes and keeping them isolated from their families and communities. The DOJ alleges that the heavy institutional bias of Florida’s Medicaid program violates the rights of these kids under the Americans with Disabilities Act, as articulated in the Supreme Court’s landmark Olmstead ruling. The children in question have complex medical conditions and some rely on ventilators or feeding tubes.

The lawsuit shouldn’t come as a surprise to Florida officials. The DOJ has been warning the state for the past couple years that its segregation of kids with disabilities was a serious problem that could result in legal action. But Governor Rick Scott and his Tea Party allies in the legislature instead chose to refuse federal funds that would have helped these kids remain at home because they wanted to make a political statement about the Affordable Care Act. Florida also has not increased its reimbursement rates for home care services since 1987.

For people with disabilities, Florida and Minnesota might as well be different countries. It shouldn’t be this way, but our fragmented Medicaid system perpetuates these gross inequities. Perhaps this lawsuit and others like it will persuade state policymakers to reassess their priorities and work in a bipartisan fashion to ensure that both kids and adults with disabilities can live and thrive in their communities.

Jul 222013
 

I’m on vacation most of the week, so blogging may be light for a few days. My new wheelchair arrived late last week and I’m still trying to work out some of the kinks. The total pricetag came to $14,000. The tilt function alone is listed at $5,000. The joystick and LCD screen: another $1,500. My insurance covered the total cost, but the massively inflated prices are yet another symptom of our dysfunctional health care system. There’s no good reason a simple joystick and display should cost more than my iPhone.