The BBC reports on the case of Baby RB, who is at the center of a legal battle between his mother and father that may ultimately determine whether he lives or dies. Baby RB has a myasthenic syndrome, a congenital condition that makes it impossible for him to breathe independently. The father wants his son to have a tracheostomy, which might assist his respiratory functions. The mother, supported by the hospital, wants all life support systems removed from the boy.
I’m in no position to judge either parent’s actions. Baby RB’s disability is undoubtedly severe and, should he live, he will probably require constant care. But ventilators are becoming smaller and more portable all the time. The twenty-first century U.K. is probably as good a time and place as any to grow up with a severe disability.
In the end, the decision rests with parents. Here’s hoping they can come to agreement with minimal intervention from the courts.
