Nov 152009
 

Here are a couple follow-ups on posts from the last few weeks:

  • Remember Ian Pearl, the gentleman with spinal muscular atrophy whose private insurer yanked his coverage after deciding that his nursing care was too expensive? The insurer decided to restore Pearl’s coverage rather than continue to be portrayed in the media as the evil, greedy corporation who hates people in wheelchairs. Pearl and his family continue to advocate for health care reform and are lobbying for a proposed New York law that would require insurers to obtain permission from the state before dropping group policies unilaterally. 
  • Baby RB, the U.K. infant at the center of a legal battle between his parents over whether to keep him hooked up to a ventilator, will soon have his life support removed. His father withdrew his objections to switching off the vent. The judge commended both parents for the love and devotion they showed their son.
Nov 142009
 

Assitive technology is sometimes developed in corporate R&D labs and then marketed to the general public. The Intel Reader, a new device that scans printed text and converts it into speech for users with visual impairments, is a good example. Intel probably spent a considerable amount of time and money developing this device, but a list price of $1,500 is still out of reach for a lot of people.

That’s why it’s encouraging to see development of homebrew, low-cost assistive technology like the EyeWriter. The EyeWriter uses off-the-shelf parts and open-source software to enable artists with physical disabilities to draw and sketch using only eye movement. Here’s a video showing the Eyewriter being used by Tony Quan, a graffiti artist with ALS:

It would be great to see big corporations like Intel supporting some of these community efforts to produce affordable assistive technology that can dramatically improve lives. As I’ve said before, proprietary devices will always be needed, but I think the market is big enough to accommodate options at both the high and low end.

Thanks to BoingBoing for the tip on the EyeWriter.

Nov 132009
 

MinnPost is running an article about the reason people break up with their book clubs. According to an informal poll done by the author, most people leave because of toxic group dynamics, incompatible reading preferences, or a general lack of motivation. Here’s my favorite quote from the article:

One man, for example, showed up to a meeting with a Popular Mechanics magazine and was dismayed to discover they didn’t consider it potential reading material.  
  

I’m fortunate that my book club has experienced zero drama to date. I attribute that to the thoughtful and respectful people who seem to gravitate towards the group. Or perhaps they are still working up the courage to end my petty tyranny.

Nov 122009
 

Everyone needs to go read Aimee Mullins’ terrific essay at tech blog Gizmodo on disability, prosthetics, sports, and the thin line between competitive advantage and “unfair” advantage. Recalling the hue and cry surrounding fellow athlete and amputee Oscar Pistorius when he petitioned to compete in the Olympics after successfully competing against other able-bodied athletes in world competition, Aimee points out that the Cheetah prosthetic leg used by both her and Pistorius is not exactly new technology. As with most pieces of technology, it’s the user that makes the difference, not the technology itself.

Mullins then compares the hand-wringing that greeted Pistorius’ Olympic bid to the more enthusiastic reception that new aquadynamic swimsuits received in the Beijing Olympics. Those suits enabled swimmers to break all kinds of records, but the press couldn’t stop breathlessly commenting on their gee-whiz factor. She also comments on Tiger Woods’ remarkable winning streak following his first LASIK surgery (he later had a second).

It seems to all come down to concepts of bodily integrity. Sports fans don’t have a problem with fancy swimsuits, LASIK surgeries, or even performance-enhancing substances because, in the end, the athletes are still competing with their own arms and legs. In other words, they look human. But slap on a pair of prosthetics and the fans get a little queasy, even if they can’t articulate why. The “otherness”, cosmetic as it may be, is enough to take people aback. But when the “other” starts kicking the asses of nominally able-bodied athletes, panic ensues.

Mullins conclude with a glimpse into the future. She contemplates the consequences of prosthetics that can be programmed to function within the limits of human performance. She writes:

The chip used in a prosthetic that will dictate “acceptable human” metric-based output is what will be allowed in the Olympic standard; meanwhile, the Paralympics will be no holds barred. In an ironic, amazing cultural flip, you will see runners in the Paralympics going faster than those in the Olympics. Now won’t that be an interesting comment on “dis”ability?

Nov 112009
 

I walked past a big-screen television in the skyway today that was tuned to Fox News. Fox was doing some sort of slide show depicting soldiers in uniform, which is probably to be expected given that today is Veterans Day. But Veterans Day did not begin as a generically-themed federal holiday designed to honor military service. It began as Armistice Day, marking the end of the Great War (World War One). At the time, the scope of death and destruction left in that conflict’s wake shocked the conscience and many believed that it was, to quote a historical cliché, the war to end all wars. Of course, we know now that the end of World War One set the table for the feast of horrors that was World War Two. The holiday certainly encompasses the desire to honor veterans, but it was also originally intended to serve as a day to reflect on the terrible costs of war. The original Congressional Act declaring November 11 an official holiday stated that this is “a day to be dedicated to the cause of world peace and to be thereafter celebrated and known as ‘Armistice Day’.”

Americans tend to be an ahistorical people, which is surprising given our pronounced traditionalist streak. We tend to assume that the way things are now is how they have always been. But I think it’s important to remember that this holiday has roots that, for some, might be inconvenient to acknowledge.

Nov 102009
 

Amazon just released the PC version of its Kindle reader. Of course, I downloaded it as soon as I saw the news and purchased three Kindle books (a couple mystery/thrillers that had been sitting on my wishlist for a few years as well as Ian Banks’ Transition). The software is still in beta, so it doesn’t have many frills. Text can be re-sized and navigation is pretty straightforward. If you made notes or highlighted passages on a Kindle device, those can be synched with the PC version. Unfortunately, you can’t highlight or annotate text in the PC version (although Amazon hints that might change in the near future).

I don’t plan to stop buying physical books and I’m still waiting for an accessible e-reader that won’t chain me to my desk, but I also like not having to wait for someone to turn the pages or having to flatten book bindings so I can read the margins. This will likely be a tide-me-over technology, but I’ll gladly take it.

Nov 092009
 

In a somewhat novel application of the Americans with Disabilities Act, a gamer with a visual impairment is suing Sony for failing to make its online games accessible to people with disabilities. I’m assuming that this individual is basing his claim on Title III of the ADA, which covers places of public accommodations. The suit raises an interesting question: are massively-multiplayer games like World of Warcraft and EVE Online places of public accommodations under the ADA, just like movie theaters, restaurants, or museums? While not binding precedent, Target settled a similar suit last year regarding the accessibility of its retail website. The rise of social gaming may expand the focus of accessibility advocates beyond websites to any application that makes itself available via the digital commons.

I can’t imagine it would cost Sony much additional expense to add some basic accessibility features to its online games and such investments might pay dividends in terms of more customers. Sony may want to emulate Warcraft developer Blizzard, which a gained a reputation for making its games accessible to gamers with a range of disabilities. A little too accessible, judging from the number of hours I’ve spent playing the damn thing.

Nov 082009
 

Congress made a little bit of history last night when the House passed a comprehensive health care reform bill. The vote was closer than I’d like to see, but it creates significant momentum towards final passage. And abortion, not the public option, proved to be the issue that almost killed the bill in the end. The resulting compromise is terrible public policy motivated by the worst kind of paternalistic sexism. It prohibits lower-income women from accessing abortion services on the exchanges to be created under the bill, including private insurance policies. Of course, women of means will still be able to get abortions without any restrictions.

I understand that the pro-life movement has deep feelings on this issue, but their actions in this most recent debate demonstrate a really distasteful form of classism. Federal law already restricts women on Medicaid from receiving abortions, but this provision extends that prohibition to private insurers. As a society, we seem to have a fondness for complicating the lives of people in poverty as much as possible.

Final negotiations between the House and Senate may result in a less draconian provision, but I’m not optimistic. Overall, this is still a really good bill and it will help millions of people. Those of us who believe in abortion rights may just have to increase our donations to Planned Parenthood.

Nov 072009
 

The Guthrie’s production of Brian Friel’s The Faith Healer is getting a considerable amount of attention in the local press because it marks Guthrie Artistic Director Joe Dowling’s first appearance on-stage in several decades. Dowling brings an understated charm to the titular role of Frank Hardy, an itinerant faith healer who travels through the small villages of Wales, Scotland, and Ireland with his jovial manager and beaten-down wife. The play is told in a series of monologues by each of the three characters as they recount their own versions of the events leading up to a tragic incident in a remote Irish hamlet.

My attention on the play didn’t really focus on the play until the second monologue, which is told by Frank’s wife Grace. Sally Wingert is absolutely captivating in the role, imbuing the character with a searing anguish that is almost too overwhelming to watch. From there, the play finds its way to a conclusion that is sudden yet expected.

The play is worth seeing for the textured performances and the darkly poetic language. I’m not sure that Dowling is a great actor, but he picked a great play with which to make his return to acting.

Nov 062009
 

As a rule, I don’t normally don’t post cheesecake on this blog. But when it’s Star Wars-themed cheesecake, I’m powerless to resist.

This is Carrie Fischer and her stunt double, both…er…dressed in now-iconic slave girl outfits and enjoying a little sun on the set of Return of the Jedi.

You know, ROTJ might have been a much better movie if it had featured more leg and less Ewok.

Thanks to Kottke for the tip.