Oct 062008
 

As you can see from the comments in the post below, last night’s traffic spike was triggered by the latest episode of Extreme Makeover Home Edition, which featured a family with two daughters with SMA. If you ended up at this blog via Wikipedia, welcome. See the picture of the guy with the ginormous head on the upper left corner of your screen? That’s me. Feel free to peruse the five+ years’ worth of archives. Amidst all the pontificating diatribes against President Bush and self-involved moanings about not being able to get a date, you’re bound to find something mildly interesting.

Thanks for the free publicity, ABC. Lost is a great show, by the way. It’s one of the few things that doesn’t sit unwatched on my TiVo for weeks at a time.

Oct 052008
 

Traffic to the blog suddenly spiked tonight and I’m at a loss for an explanation. Most of the hits are coming from this Wikipedia article on SMA that I, uh, edited last year to include myself as a reference. It was a lame attempt at self-promotion, but it seems to be paying off now. Damned if I can figure out why, though. Maybe there was something on the Discovery Channel.

Oct 052008
 

Living downtown is making me soft. Today, a friend and I wanted to grab brunch at Hell’s Kitchen, a popular spot for Sunday diners. We called ahead and discovered that the wait time for a table was an hour and a half. So my friend and I hung out at my place while my nurse took a quick walk over there, put our name down, and came back with a pager that would notify us when the table was ready. No milling around in some crowded lobby for us. About an hour later, we got paged and I was soon enjoying a rather spicy Bloody Mary.

It’s like I’m living the life of some sort of Midwestern Jerry Seinfeld, complete with Junior Mints.

Oct 042008
 

The bailout legislation enacted yesterday did include one provision that health care advocates have long waited for: the Mental Health Parity Act. This law prohibits private insurers from imposing more restrictive limits on mental health services than those for other medical services. For example, an insurer cannot require higher co-pays for mental health visits compared to other types of clinic visits. And it can’t cover fewer mental health visits compared to the number of covered visits for other medical services.

The Act isn’t perfect–small businesses with fifty or fewer employees are exempt and insurers aren’t required to offer mental health services. But it goes a long way towards creating better and more equitable access to mental health benefits for millions of people. The late Senator Paul Wellstone and his wife Sheila were both early and vocal supporters of this legislation, so it’s fitting that Minnesota Representative Jim Ramstad played an instrumental role in the law’s passage.

Taken together with the recent passage of the ADA Amendments Act, this Congress has created more protections for people with disabilities than any in recent memory. Granted, the previous Congresses in this decade set the bar pretty low in that regard, but both of these laws deserve recognition as significant milestones on the road to a more just and accessible society.

Oct 032008
 

OMG, Sarah Palin is adorable! If the sole qualification for Vice-President was folksy perkiness, she would be the perfect candidate. But I prefer my national leaders to have more gravitas and less phony-ness.

I watched the debate with a friend at the Riverview Theater in south Minneapolis. As you might guess, the crowd leaned heavily Democratic. Every time Biden made a witty retort, we all cheered with the kind of gusto usually reserved for professional sporting events. So not only were we completely biased, but we were also total geeks.

I’m going to have to find other ways to fill my social calendar once this election is over.

Oct 022008
 

Enough of this tiresome McCain-Obama contest. Let’s give the third-party candidates some attention. For instance:

President Shatner will put a food replicator in every kitchen and finally bring an end to the conflict with the Romulans. Plus, that Hasselhoff is a real looker.

Oct 012008
 

I just got back from meeting a friend for beers. I should’ve quit after the sixth or seventh strawful. Anything more than ten strawfuls and I start making inappropriate comments to the wait staff. You can still see the red mark on my cheek left from the slap I received. Next time, I’ll stick with club soda.

Sep 302008
 

My major task for today was to present material for both a morning and afternoon videoconference. The conference site was located in another building a few miles from my office, so I made two round trips on the shuttle bus that serves state employees in the area. And I rode in the back each time, where there wasn’t much in the way of shock absorption. The first time, it was kind of invigorating, like a cheap amusement park ride. The subsequent trips, not so much. As I bounced around in my chair, getting spinal adjustments on the fly, I had flashbacks to all those similarly turbulent school bus rides I took as a kid. And this was no shortbus like the kind you would typically associate with “special” kids like me. No, this was your standard-issue school bus, complete with a driver who had lost his hearing back before the continents drifted apart and who, judging from his terrifying driving, had absolutely no regard for the welfare of his passengers.

And people wonder how I got to be so tough.

Sep 292008
 

Ugh. Bringing work home is not conducive to quality blogging, so my apologies if this post doesn’t live up to your usual expectations. Although playing the expectations game can be a dangerous business, as the markets showed us today. A few more days like that and my retirement savings will be worth less than a box of Junior Mints. Republicans have picked a strange time to discover populism. They never seemed to care much about what their voters thought abougt the war in Iraq, the rising costs of health care, or any number of issues. But I suppose that was before this president became utterly irrelevant.

If McCain doesn’t suspend his campaign again tomorrow, look for sheer panic to grip the nation.

Sep 282008
 

During some aimless surfing last night, I stumbled across a short documentary entitled The Lucky Mutant. The film  profiles a day in the life of Keith Hogan,  a Texas man who has spinal muscular atrophy.  Keith narrates most of the film most of the film, but it also features interviews with his personal care attendants (who clearly regard him as a friend) and other people in his life. Much of Keith’s routine seems similar to my own and I nodded in agreement with his observations on the “supercrip” phenomenon.

Here’s the film: