A recent study indicates that one in four homeless Americans are veterans [PDF file]. NPR is running a series of stories about the plight of homeless veterans, including oral profiles of several vets who are or were homeless. As another commentator notes, many veterans come from disadvantaged backgrounds and are thus more likely to experience homelessness at some point in their lives. The military provides one of the few opportunities for young men and women from economically depressed regions to build a future for themselves. Veterans’ disproportionately high representation in the ranks of the homeless is stark evidence of our collective failure to support our military personnel when they re-enter civilian life. We excel at providing lip service to the patriotism of those who choose military service, but we’re even better at ignoring them once their service is complete.
To the person who submitted the comment with the 5,000+ word count: if you expect me to read your rather creepy head-scratcher of a screed, don’t use this as your introduction:
You are all disfavored. You may have been evil/preditory [sic] in your last life and this disability is how they are punishing you.
Remember the first rule of good writing: know your audience. So it’s off to the killfile with you.
Most of you probably won’t read this until Sunday, so I decided to give you some comfort reading to go with your coffee and pancakes: a story about the redemptive power of puppies. If you read the article without getting even a little misty, you’re a cold, inhuman bastard who should keep far away from children and small animals. Thanks to the invaluable Metafilter for the link.
My van wouldn’t start this morning. Since nobody was on hand to give us a jump, my nurse and I decided to throw caution to the wind and hook up the jumper cables to my ventilator battery. And to our mild surprise, the van started right up. Don’t try this at home, kids. I think I’m going to start roaming the streets and parking ramps of downtown Minneapolis in my free time, jumping stalled cars for fifty bucks a pop. I’m going to need the extra cash to pay off the hefty car repair bill I incurred later in the day. After the van wouldn’t start for a second time, I discovered that it needs a new battery and a new water pump; a rather expensive start to my three-day weekend.
In a recent ER episode, a teenage kid with a degenerative neuromuscular condition is brought in to the hospital with a severe case of pneumonia. The doctors prepare to put him on a ventilator, but the kid refuses, stating that he doesn’t want to live the rest of his life dependent on a machine. The kid persuades one of the docs to support his decision and the kid dies.
When it came time for me to be put on a vent, I was in similar dire straits: deathly ill with pneumonia and semiconscious because of the elevated CO2 in my bloodstream. I remember a team of doctors filing into my hospital room and matter-of-factly informing me and my mom that I needed to be intubated. I remember freaking out and starting to cry, but I must’ve blacked out because the next thing I knew, I was in the ICU with a tube down my throat.
In the couple years leading up to that day, my hometown pediatrician tried repeatedly to have a conversation with me about what life with a ventilator might be like, but I kept blowing him off because I didn’t want to think about it. Looking back, the transition might have been a little easier if I’d known what to expect. And I probably would have still chosen the ventilator under less urgent circumstances. Even at thirteen, I was fairly certain I didn’t believe in God and I wasn’t ready for nothingness.
I’m trying to puzzle out Pat Robertson’s endorsement of Giuliani. This is the same Pat Robertson who gave a resounding hallelujah to Jerry Falwell’s assertion that abortionists and gays were partly to blame for the terrorist attacks on 9/11. Perhaps this is consistent with the win-at-all-costs mentality that is permeating the GOP. The very real possibility of a Clinton presidency probably gives Robertson heart palpitations and he finds Giuliani’s authoritarian tendencies comforting. But it’s interesting to see how quickly family values are sacrificed at the altar of political expediency.
At The Washington Post’s On Balance blog, a father writes about Samuel, his seven-year-old son with cerebral palsy. He writes this about parenting a child with a disability:
My experience is that parents of children with disabilities face a
different balancing act. One big struggle is balancing time spent
supporting a child with a disability vs. the family’s other child(ren).
Others include marshaling the time, energy and financial resources
needed to manage a child’s medical care and therapy, and the scarce
resources left for yourself, your relationship with your spouse, and
your work.
I think about my own family and how the gravity well of my disability shaped and tempered our dynamics. I consumed a lot of of my parents’ time and energy, especially during those years when it seemed like I was getting sick every other week. And my siblings sometimes had to assume the role of caregiver or personal assistant, particularly my brother. We used to play computer games that I didn’t have the dexterity to play independently (oh, Wing Commander II, how I miss your awesomeness). And when I wanted to play and he didn’t, my petulant rages would eclipse anything that any of those whiners My Super Sweet Sixteen could muster.
I have good, close relationships with my parents and siblings, in large part because I learned that I am not, in fact, the center of the universe. Now, when I see other families coddling or kowtowing to their kids with disabilities, I wince a little bit. We may look innocent, but many of us have an almost preternatural ability to bend minds to our will.
I received an interesting e-mail from a friend who attended a lecture on disability studies. The scholar delivering the lecture commented that one of current trends in disability studies is the historical analyses of the lives of people with disabilities. Researchers are searching for diaries and other documents that might provide insight into the daily existences of people with disabilities in decades and centuries past. And that got me thinking about blogs and their potential value as primary sources for future generations of scholars. The abundance of disability blogs could serve as a treasure trove of information on the lives of people with disabilities in the early twenty-first century. To be sure, blogs alone would not provide a complete picture of the disability experience at this point in history. A substantial number of people with disabilities lack Internet access and it would be both arrogant and foolish to think that bloggers are representative of the larger disability community.
Still, blogs have intrinsic historical value and I’d suggest that it might be worth some enterprising grad student’s time to start creating an archive of disability blogs. It would be a shame to lose a lot of the content out there simply because the author stopped maintaining his or her site. Quick, somebody write a grant proposal.
As I was walking home from a movie last night (American Gangsters: decent but not spectacular), I noticed several red-clad Guardian Angels riding a city bus. The last time I checked, this isn’t New York City circa 1986. A couple of them wore wraparound sunglasses; they looked like extras from a direct-to-video movie. Is the Metro Transit system really that unsafe as to invite the presence of a group that I thought has been inactive since the early days of grunge? Or am I completely oblivious to the present dangers of life in the city?
Star Trek geeks: rejoice. You will soon be able to declare your fanboy/fangirl status from beyond the grave. A company called Eternal Image is offering Trek-themed caskets and urns to house your mortal remains once you’ve beamed up from this mortal coil. The casket looks comfy, but you probably won’t get to be shot out of a photon torpedo tube onto the Genesis planet where you’ll be miraculously rejuvenated. The urn looks like some cheap trinket from the MoMA catalog.
As for me, this kind of stuff is a little too crass for my taste. Sure, I like to get my Trek on, but I don’t want to be stuck on the ground or placed on a shelf encased in a pop culture artifact. Just hire a cadre of beautiful fishnet-stockinged women to dump my ashes in the the Seine and I’ll be happy.
