Oct 142005
 

Over on Daily Kos, someone wrote a diary on people with disabilities and the how our interests fit into the Democratic Party’s agenda. It’s not a bad analysis, but I might try to write a follow-up diary if I have the time. He glosses over some of the reasons why people with disabilities aren’t more engaged in politics, including the rampant poverty that persists in the disability community. My experience in the 2004 campaign showed me that it’s difficult to engage people on political issues when they’re preoccupied with finding a PCA to get them out of bed in the morning. The author wants to know why there aren’t more politicians with disabilities. That misses the point. The real question is why aren’t there more teachers, business owners, accountants, computer programmers, attorneys, journalists, pastors, actors, mechanics, doctors, salespeople, and so on and so on with disabilities?

Oct 132005
 

I’m taking bets on when we’ll hear the first reports of someone getting fired because they were caught in their cubicle watching porn on their video iPod. While watching movies on a tiny screen doesn’t interest me much, the ability to download television episodes for a small fee is likely to be far more groundbreaking in the long run. It will be interesting to see how many content producers get on board with this concept and license their stuff to Apple. Could Apple risk becoming a monopoly in its own right as the dominant purveyor of digital entertainment? Such a scenario would be deliciously ironic.
Speaking of irony, my brother is due to get a now-outdated audio-only iPod as a belated birthday gift. I wonder if he’ll be pissed.

Oct 122005
 

I’ve spent the last hour trying to help my sister connect her TiVo to her wireless network. I failed. Am I losing my geek kung foo? This is very disconcerting. Perhaps I’ll feel better about myself in the morning.

Oct 112005
 

I listen to the Nightline podcast from time to time and they recently did a show on adults with autism. I give Nightline credit for doing a story on adults with any kind of disability. Every local news station in the country probably has an entire shelf in their archive labeled “Cute Handicapped Kid Stories.” But adults with disabilities aren’t as cuddly, at least not according to the media. (I happen to be very cuddly, but that’s another entry.) The story discussed the enormously important role that parents play in the lives of their grown children with autism, and how the transition to adult services can be quite jarring for these families. School is the bedrock in the lives of a lot of kids with disabilities. School gets them out of the house and is often their only forum for making friends and building social skills. When that familiar setting is gone (and a lot of people with developmental disabilities crave routine), it takes a lot of effort to replace it with something else that gets them out into the community.
And where the hell are the disability podcasts? I just did a quick Google search and the results were disappointing. There are podcasts out there featuring people talking about, I shit you not, their bowel movements and we can’t come up with a disability-themed podcast? Don’t make me do it myself. The disability community must have a bunch of better-sounding people than me who could do a weekly podcast. So where are you?

Oct 102005
 

I’m organizing a painting party to paint most of the walls in my condo. With new floors going in soon, I decided it was time to go with a color scheme other than white. The living room will be a combination of a medium gray and brick red, while the bedroom will be done in blue. Since I have so many windows in my place, it shouldn’t take long to get the job done. My job will be to supply food and drink, while also roaming from room to room to give approving nods and offer helpful suggestions like, “You missed a spot there.”

Oct 092005
 

The reports of 20,000 dead in Central and South Asia put our own hand-wringing about Katrina into some perspective, don’t you think? I certainly am not implying that one tragedy is inherently worse than the other. But we Americans have a curious reaction to large-scale disasters. I think we’re accustomed to reading about disasters in faraway places as we sip our morning coffee. But when the shit hits the fan here on the home turf, we act all shocked and surprised, like we’re the first people anywhere in the history of the planet who had to go through this. Because we’re Americans, goddamnit. If it doesn’t happen here in the States, then it hasn’t really happened yet. We’re such a media-saturated culture that we can’t place disaster outside the fictional realm of television and movies. When the media interviews the poor schlubs who are coping with the aftermath of a disaster, at least one of them will say, “Man, it was just like what you see in a movie.” Maybe that’s a consequence of both our geography and technological sophistication. When the Big Bad, whether natural or man-made, does slam into our reality, we don’t have any context for it other than a Jerry Bruckheimer movie.
For some reason, my keyboard died (the physical one, not the on-screen version). So I’m off to hunt a replacement down.

Oct 082005
 

I picked up a computer game on eBay (probably my first such purchase in a year) and I’m going to dive into it soon. But first, I wanted to point out a Cornell study that shows that the employment rate for people with disabilities actually dropped a couple points in recent years. Not great news for those of us in the world of disability policy. The systemic barriers that prevent people with disabilities from working are still multitude, and the assumption that people with disabilities can’t work is one that remains deeply ingrained in our culture. I wish I knew the catalysts that will eventually reverse this trend. Maybe it will be the aging of the boomer generation. Maybe it will be some unforeseen technological leap. But the policies that currently exist aren’t working. To be successfully employed, people with disabilities need a comprehensive range of supports that include health care, transportation, personal assistance, training, housing, and so on. Right now, we aren’t doing a terribly good job of delivering those supports in one comprehensive, coordinated package. We make it really difficult for people to navigate and understand the services that are available, so it should be no surprise that most people simply give up and choose the easier, more secure option of remaining unemployed.

Oct 072005
 

I was just checking out Salon’s new page design. I used to read Salon all the time before it went subscription-based. It was one of the first websites that I visited on a regular basis. In fact, it played a major role in introducing me to a lot of music and books that I probably never would sampled otherwise. Now I read that, holy fuck, Salon is celebrating its 10th anniversary next month. When the hell did that happen? Too bad Suck isn’t still around. Suck had some brilliantly funny writers. But I digress. I like the redesign well enough that I think I’ll finally purchase a subscription. And maybe if I write enough kiss-ass letters to the editor, they’ll let me do some guest-blogging.

Oct 062005
 

Yesterday, the Supreme Court heard oral arguments on whether federal law trumps the Oregon Death with Dignity Act, which allows physicians to prescribe lethal doses of narcotics to terminally ill patients who wish to die. I have a particular interest in this case because, as some of you know, I published a law journal article regarding the ODDA a number of years ago. Since the Court has chosen to take such a scattershot approach to federalism in recent years, I’m not going to even venture a guess on how they will rule. The Court likes to bang the states’-rights drum when Congress presumes to pass some touchy-feely civil rights law (witness the ADA), but the hammer of federalism comes down hard when states try to pull something subversive (like prescribing marijuana for medicinal purposes).
In the years since I wrote that article, my own views on the ODDA have evolved. Everything I’ve read indicates that the law has been implemented responsibly and my initial concerns regarding abuse were never substantiated. I do think that laws like this need to be crafted with extreme care and they need to contain muscular oversight provisions. This is not euthanasia as practiced in places like the Netherlands. The ultimate decision is left to the individual, where it rightfully belongs.