Jul 302003
 

I should have posted this earlier, but here is a blog written by a woman with multiple sclerosis. It’s really good, so check it out:
Broken Clay
I finished my latest short story. I hate it, but it feels good to finish it. I have a couple ideas for future stories, but I think I’ll focus on my book for the next couple weeks.
Following up on my link last week about the mind-controlled wheelchair, here’s a Wired article about brain-computer interfaces. If they can develop a way for me to play Doom III with just my brain, they can cut me open anytime. Imagine how much ass I could kick on-line by just thinking about it. Mwwaaa haaa haaa! This may sound weird, but this is actually an exciting time to be severely disabled. All of the pie-in-the-sky technologies like BCI are finally on the verge of becoming a reality.
I’ve decided that my next goal for this blog is to get it mentioned on Slashdot. Should we start an e-mailing campaign or should I just use my Jedi mind powers to persuade the editors I’m super-cool? Thoughts?

Jul 302003
 

In a news conference this morning, Bush announced preliminary efforts to “codify” heterosexual marriage. He also dropped a not-so-subtle hint that gays are “sinners.” I guess someone reminded him who his masters are.
In other news, the Administration geniuses suddenly realize that pulling air marshals from transcontinental flights might not project the sort of “tough on terrorism” image Bush has cultivated over the last two years.
A question for all my overseas and Canadian readers. If Bush wins in 2004, can I come stay with you? I don’t need much food and I can just sleep on the sofa. I just don’t know if I can take another four years of this.

Jul 292003
 

I’ve been busy getting things ready for my switch to having independent nurses. It hasn’t been easy. Most people in my position use a nursing agency to manage their staffing needs. I’ve been with a nursing agency of one type or another since I first was trached at age 13, some good and some bad. When I decided to go independent, I had to familiarize myself with a complex system of regulations, advertise and interview for additional nurses, show everyone how to submit the proper documentation to get provider numbers, orient new staff, draft a schedule, etc. I can’t imagine too many people choosing to go this route; it’s more complicated than it needs to be. But for my lifestyle, I think this will actually work pretty well for me. For the amount of advocacy I do for consumer control in my job, I should start practicing what I preach.
Democratic leaders are warning candidates not to seem “angry” or “far left.” When, oh when, will Democrats stop shrieking like schoolgirls when someone calls them liberal? For those of us who proudly proclaim our liberalism, it’s disheartening as hell. You don’t see conservatives running away from the “conservative” label. We let conservatives bait people with the “liberal” tag for too long. It’s time to take it back.

Jul 282003
 

According to a research team at Berkeley, political conservatives like Reagan, Hitler, and even Stalin are motivated by a shared psychology. Those motivations include “fear and aggression, dogmatism and intolerance of ambiguity; uncertainty avoidance; need for cognitive closure; and terror management.” Conservatives are also suspicious of change and accept the basic premise of inequality. Read the full press release here. They needed a study to figure this out? Couldn’t they just watch Fox for 10 minutes?
And here’s another story that is sure to piss off the flag-wavers in Washington. Emmanuel Todd, the French historian who predicted the fall of the Soviets, says that the Pax Americana ain’t gonna happen.
Let the flaming begin.

Jul 272003
 

Was at Borders the other day and picked up Death in Holy Orders by PD James and Probability Moon by Nancy Kress. I have a problem when it comes to books. I walk into a bookstore and tell myself that I’ll just look around. That usually doesn’t work. It’s like a fetish, except you don’t have to take a shower afterwards. I’ve also been meaning to get over to Uncle Hugo’s again. Uncle Hugo’s is an independent bookstore in Minneapolis that specializes in fantasy and science fiction. They have an amazing collection and I want to get some stuff by Harlan Ellison that I can never find in the chain stores. The only problem is that Hugo’s has books scattered everywhere, including piles on the floor, which makes navigating the aisles in a wheelchair just a bit difficult.

Jul 262003
 

A couple of interesting disability-related items. First, Governor Dean has posted the disability rights plank of his platform. He seems to have a good grasp of the fundamentals, including full funding of IDEA, passage of MiCASA, and appointing people with disabilities to visible posts in the Executive Branch. Democrats have been traditional supporters of disability rights, so it shouldn’t be too surprising that Dean is addressing this issue. At the same time, a lot of this support comes across as patronizing lip service. Dean seems pretty thoughtful and it will be interesting to see how the other candidates respond.
The Minneapolis Star-Tribune has an article about my former employer, PACER Center, and its joint collaboration with IBM on a summer technology camp for girls with disabilities. The camp is intended to introduce these girls to careers in technology and science. The girls are also paired with mentors from IBM. It’s a fucking great idea. I wish stuff like this had been around when I was a kid. For me, summers were mind-numbingly boring because there just wasn’t much for me to do. I sometimes enrolled in a summer class at the local university, but I still had a lot of time on my hands.
The other night, my dad neeed help figuring out how to use the burner on his new notebook computer. I had to explain to him that you can’t just save a file to disc like you would with a floppy. We had to go over the process a few times before he got it. At one point, I wanted to scream, “Dad, it’s after 11 and I’m more than a little tired and I just want to watch the latest Project Greenlight on my TiVo! Can we do this later?” But I didn’t. I wonder if, in another 10 or 20 years, I’ll be similarly befuddled by new technologies.

Jul 252003
 

Slashdot points to a fascinating article about efforts to create a wheelchair that can be controlled by brain impulses. I’ve had daydreams about such a device. I use an electric wheelchair but I rely on my nurses to maneuver me because I’ve never found a control system that reliably works for me. If they can perfect this technology, I’ll be one of the first people in line for my very own Professor X chair. But I also have a question: if I’m rolling down the street and focus my attention on an attractive woman, will the chair start following her? Have the designers contemplated such hazards?

Jul 242003
 

Had a pretty good birthday. My parents gave me some clothes and a couple books. My sister gave me a couple CDs including the new Radiohead and Liz Phair. And I’ve decided to have a party with my friends in a couple weeks, so I’ll have to send out e-mails about that. Party at Mark’s! W00t w00t! Let’s REALLY annoy my asshole neighbor! And like I said, you’re all invited.
According to this site, the name MARK means:
The name of Mark gives you a very individual, reserved, serious nature.
Well, if you say so. But I’m not a total stiff.
You stick stubbornly to your ideas or decisions, in spite of any appeals or advice; you are not willing to accept a compromise.
That’s because I’m right. Always.
You prefer to be alone with your own thoughts, rather than in the company of others. This name restricts spontaneity in association and the fluency of your verbal expression. When you are required to express yourself in personal matters requiring finesse and diplomacy, you feel awkward and embarrassed. Although you realize perfectly well what is expected of you, you are unable to find the right words, and hence you end up saying something inappropriate in a candid way.
Geez, this makes me sound like a total loser. I’ll have you know I’m smooth like a trophy wife’s face after a Botox injection. I’m more polished than a high school senior’s application to Harvard.
You can express your deeper thoughts and feelings best through writing.
Okay, lucky guess..
Your friendships and personal associations are rather restricted, being limited to those of a similar nature who can understand and accept your rather straightforward yet reserved manner.
Hardly. I’m very likeable. Just ask my last three victims.
You are steadfast and loyal, and do not allow gossip or anything belittling to be said against those whom you accept in friendship.
True. Don’t dis my posse, yo.
You find satisfaction in being outdoors or in getting out into nature, or in dealing with the products of the earth.
Ah ha ha ha ha ha! Okay, I’m done. No, wait…ha ha ha hee hee ha HA! Man, that’s some funny shit.
There is originality and depth of thought contained in this name, particularly along practical and mathematical lines.
I almost failed trigonometry.
This name can adversely affect the health of your respiratory organs, the heart and lungs.
See, Mom and Dad? This is all YOUR FAULT! Why couldn’t you have given me some nice innocuous name like Billy or Melvin?
Also, you are prone to suffer from weaknesses centering in the head.
Screw you, hippie website!

Jul 242003
 

There’s an interesting story on the CS Monitor about the Patriarch of the Orthodox Church and how he has become one of the most visible spiritual leaders advocating for environmental causes. I wish we saw more of this. I have never understood the antipathy that many Christians, especially evangelicals, hold towards environmentalists. I wonder if it is some remnant of Cold War thinking that equates environmentalism with Communism.

Jul 232003
 

Thirty years ago today, a hospital in Ulm, Germany was first graced with my presence. That’s right, I’m 50% Old Europe, which probably explains why the current Administration and I don’t get along very well. Going to try to leave work early so I can get home to tend to some important tasks. Namely, opening presents. I didn’t get yours yet. Yes, you, the one sitting at the computer with the guilty look on your face. But I’m sure it’s in the mail.
Right?
I’m so disappointed I didn’t make this list of blogs banned in Iran. Anyone know a mullah to whom I can slip a few bucks? It’d be so cool if I could tell girls I’ve been banned somewhere!