Jan 092007
 

If Stephen Hawking gets to go into space, can we all agree that I should be the next cripple to break the surly bonds of the Earth? We need to start a letter-writing campaign to convince Richard Branson that I’m a worthy candidate for a trip to the stars. Better yet, maybe he could put me and Hawking on the same flight. It would make great reality television. Once we’re in zero-g, Hawking and I will engage in hand-to-hand combat to the death. Imagine the kind of advertising dollars an event like that would attract. Think Survivor with lots more blood and drool.

Jan 082007
 

I finally had the opportunity to see Children of Men yesterday, a film I’ve been anticipating for quite some time. It was brilliant. The movie depicts a dystopian future in which humanity has, for reasons unknown, lost the ability to bear offspring and much of the world has collapsed into violence, save for the UK, which is a a grim and xenophobic police state. Clive Owen portrays an everyman who is not particularly brave or heroic, but still tries to do the right thing despite his deeply cynical view of the world. The film works because it doesn’t wave its arms at the audience and scream, “Look! Look! It’s the future!” The world is familiar but disquietingly foreign at the same time. Director Alfonso Cuaron makes seamless shifts between the intimate and the sweeping. The last third of the movie was particularly astonishing in its scope. The cast is uniformly strong, but Owen and Michael Caine in particular give compelling and nuanced performances. Even the soundtrack is great.

Can you tell I like this movie? I wish more intelligent, adult science fiction like this was being produced. However, I’m guessing that it will be lucky to break even at the box office. But if I have to settle for scraps, at least this one was worth the wait.

Jan 072007
 

Ashley is a nine-year-old girl with severe cognitive and physical disabilities. She has extensive brain trauma that prevents her from sitting up, speaking, or otherwise having any significant interaction with her environment. She is also the subject of intense debate in the bioethics and disability communities because of her parents’ decision to halt Ashley’s physical development through surgical and pharmaceutical interventions. Ashley has undergone a hysterectomy, removal of developing breast buds, and hormonal treatments to freeze her growth. On a blog created by her parents to describe their life with Ashley, they insist that they permitted these treatments with only Ashley’s comfort and happiness in mind. They claim she will have fewer bed sores and that her lighter body size will make it easier for them to take her out of the house.

First of all, I have no doubt that Ashley’s parents are motivated by a sincere desire to do what they think is best for their daughter. And, from a certain point of view, I can understand their reasoning. As someone who is naturally undersized, I won’t deny that my stature offers certain advantages in terms of getting around. But the notion of surgically and chemically altering someone without her consent fills me with deep-seated misgivings. As Wheelchair Dancer points out, it seems that Ashley is being modified to accommodate her environment rather than vice versa. Wouldn’t an adequate staff of caregivers, along with appropriate assistive technology, greatly ameliorate the health and mobility concerns that apparently prompted this decision? Whose convenience and comfort really is at stake here?

I can’t also help but think that forces of gender discrimination are at play here as well. Let”s suppose that my parents had wanted to have me castrated because I was never going to have an intimate relationship with a woman and they wanted to spare me the occasional discomfort of unfulfilled sexual arousal. I’m not so sure they could find a physician willing to go along with this. Yet the decision to remove Ashley’s uterus and breasts is somehow more acceptable because these attributes of female anatomy are considered burdensome.

I sympathize with the parents’ efforts to improve their daughter’s quality of life, but the invasiveness of their methods leaves a bad taste in my mouth. People with disabilities don’t deserve to have their bodies treated as organic clumps of Play-Do that can be shaped and modified as others see fit. Even the most impaired of us should be afforded some basic autonomy over ourselves.

Jan 062007
 

I’ve had my share of teachers and professors who were clueless when it came to dealing with a student with a disability in their class, but at least none of them ever called me a cripple (not to my face, anyway). I’m not surprised that this word still has currency as an insult. What does surprise me is that a teacher–a British teacher!–would get caught flinging this word at a student. Aren’t all British teachers crusty but lovable souls who are in a constant state of mild annoyance caused by their students’ failure to grasp the conjugation of irregular Latin verbs?

Jan 052007
 

The tubes of the internets offer many timesinks for whiling away an hour or ten,  most of which I’ve never tried. I don’t have a WoW or EQ account and I don’t have a MySpace page. But I am kind of curious about Second Life, the online digital world that is attracting more and more media buzz. I mean, if geek idol Warren Ellis is writing a column about it, it must be cool, right? Maybe I’ll create an avatar and see what all the fuss is about. I might be able to use it as a forum for recruiting initiates into my self-styled religion (and get-rich-quick scheme): The Temple of He Who Dwells on the 19th Floor, Reformed.

Jan 042007
 

I finally broke down last week and order the LCD monitor I’ve been coveting the last few months: the Samsung 204BW 20″ widescreen. I’m not easily impressed, but this thing is gorgeous. The images are bright and crisp; I had forgotten that the color white isn’t supposed to look jaundiced. I watched a bit of a Lost episode I had downloaded and I’m not ashamed to admit that I began to silently weep. And who knew I had this much desk space? Best of all, I can’t find a single dead pixel (always a risk when buying a LCD).

I’m a bit mystified as to what to do with my old 19″ CRT. It’s not worth anything, but perhaps a school or a non-profit can make use of it. After all, it most likely has another 5-10 years of life remaining.

Jan 032007
 

Before the holidays, I did an informational interview with someone who is trying to find a job in the disability field. This person has a visible disability and expressed some frustration at being unable to find any decent job leads. I’m going to try matching this person up with some colleagues in the hopes they may know about some opportunities that might be out there. I remember my own feelings of anxiety and uncertainly when I was last unemployed, so I’d like to do something to help this person. There are a number of agencies and organizations in the area that focus on disability issues, but the challenge is getting one’s foot in the door at the opportune moment.

Jan 022007
 

If you randomly surveyed ten Americans and asked whether they were pessimistic or optimistic about the future, I’m willing to bet a month’s salary that at least 60% would say pessimistic. The specific reasons for that pessimism would vary. Our schools are crumbling. Our morals are disintegrating. People want to kill us. Indeed, a quick scan of the daily news offers ample persuasion for staying in bed and watching endless reruns of Good Times.

While we may have plenty to feel glum about, the deep thinkers at the Edge Foundation want to remind everyone it’s okay to have a little hope. It asked dozens of scientists, academicians, writers, and policy wonks to name one thing about which they are optimistic. Their answers span the range of human knowledge and endeavor. An emerging boom in the development of green technology. Falling levels of global violence. The decline of religious fanaticism. Whether you agree with the answers or not, these mini-essays provide fascinating reading.

As for me, I’m optimistic that we’ll have universal health care in the next two decades, and it will likely be single-payer. Big corporations are starting to realize that our current patchwork health care system is a drag on both their profitability and the economy. Eventually, the political will necessary to break the chokehold of the insurance companies will push lawmakers to a comprehensive and lasting solution.

Jan 012007
 

My Altairian overlords may have colossal intellects, but they can still be astonishingly reckless. I keep telling them, “Quit buzzing airports! Quit freaking out elderly drivers on lonely country roads! You’re going to give us away!” But they just wave their pseudopds at me and tell me to relax. Or at least I think that’s what they’re saying. They might also be telling me that they want to make a light snack of me once they have no more use for my insights into human behavior. Altairian verbs still trip me up.

Dec 312006
 

You didn’t think I was going to let this year come to a close without some sort of retrospective and completely subjective list, did you?

Best Movie I Saw: United 93  Paul Greengrass has enough artistic maturity to get out of the way and let the events of the hijacking unfold without embellishment or gauzy revisionism. An important film both for its historical accuracy and intellectual honesty.

Best Book I Read: Case Histories by Kate Atkinson  I really like Kate Atkinson’s dry wit–you Brits do dry and witty with so much more style than we Americans. The book isn’t a great mystery, but it’s a great character study.

Best Song I Heard: “Stars above Us” by Saint Etienne. This song got my groove on for much of the past summer. It makes you smile, but not in a dopey sort of way. It makes you want to throw your own roof party and invite all your hip, urbane friends. I still can’t figure out how this band flew under my radar for so long.

Best Album I Purchased in its Entirety: Fox Confessor Brings the Flood by Neko Case  Gorgeous voice. Gorgeous arrangements. Neko’s work with the New Pornographers is impressive, but this album conclusively demonstrates that she is more than a power-pop chanteuse. Country music couldn’t figure her out, but so much better for the rest of us.

Best TV Show I Watched: The Wire  I enjoyed both Battlestar Galactica and The Office, but this season’s run of The Wire was stunning. Its devastating tale of Baltimore’s barely functioning civic institutions (schools, city hall, and the police), told by a cast of bureaucrats, cops, assassins, and politicos, was as compelling as any well-written novel.

So there you have it. 2006 as seen through my personal pop culture lens.

My hopes for the new year remain the same. Still need to finish the book. Still need to kiss a pretty girl. But mostly, I’m just waiting to see what one more spin around the sun will bring.

It’s snowing pretty heavily as I write this. I hope 2007 brings you something grand. Thanks for putting up with me.