Feb 122006
 

Say you have a mobility impairment that prevents you from emphasizing your devastating verbal insults with an appropriate corresponding physical gesture.  Thanks to the miracle of modern of modern engineering, people with disabilities can now get the satisfaction of showing exactly what they think when confronted with ignorance, stupidity, or simple bad manners.  Ladies and gentlemen, I give you the Remote-Controlled Middle Finger
 
http://www.strangenewproducts.com/uploaded_images/remote-controlled-middle-finger-747895.jpg
 
 
I’m so going to mount one of these on my chair and hack it to respond to voice commands.  No more Mr. Nice Gimp.  The gloves are coming off.
 
Thanks to Michelle B. for tipping me off to this incredibly useful assistive technology. 

Feb 112006
 

I’m in the initial stages of setting up my del.icio.us bookmark list.  You can find it here.  At first, I thought I would add clever note to each entry.  But I stopped feeling clever after the six or seventh entry .
 
I had my hair chopped and colored today, which means I’m feeling quite metrosexual right now.  Perhaps I’ll get off the computer and hang pictures or arrange my closet or something. 

Feb 102006
 

Legal Affairs recently hosted an on-line debate regarding the future of the ADA and the disability rights movement in general.  The participants were Ruth O’Brien, professor of political science at City University of New York, and Sam Bagenstos, professor of law at Washington University and one of the attorneys who represented Tony Goodman in the recent Georgia v. Goodman Supreme Court case.  They look at the relatively narrow decisions the Supreme Court issued in the Lane and Goodman cases and discuss whether the ADA is expanding.  As Professor Bagenstos points out, both decisions technically represent victories for the disability community, they don’t address many of the day-to-day challenges that people with disabilities confront.  Corner stores are still inaccessible, most movie theaters don’t provide audio description or closed captioning, millions of people with disabilities don’t have access to public transportation, and affordable, accessible housing is nonexistent in many communities. 
 
I think the disability rights movement is in a defensive posture at the moment, which is hardly surprising given the current political climate.  It’s nearly impossible to promote further integration for people with disabilities when the small degree of progress we have made is constantly under attack.  But the pendulum will inevitably swing the other way and we have to be ready for it.  The ADA, while an important piece of legislation, is only a partial fulfillment of the promise of a truly accessible and equitable society.  We need to find common ground with all of the issue groups that want affordable health care, quality education for all kids, better public transportation, etc.  We need to work with these groups on selling these policies to the public as part of a comprehensive vision.  We need to show how these things benefit everyone, not just the oppressed or underprivileged.  In short, we need to start seeing ourselves as part of a larger movement for social justice and civil rights. 
 
It frustrates me when disability activists get skittish about allying themselves with other advocacy groups.  We expect everyone to be sympathetic to our concerns, but I’m not sure we always return the favor.  If we are really serious about pushing for this vision of a more accessible society, we can’t get there alone.  We need other groups to tell us, “We’ve got your back.”  More importantly, we need to give them a reason to say that to us.

Feb 092006
 

My friend Jay Weiner, who writes for the Star Tribune, is in Turin reporting on the Winter Games.  And he’s gone all New Media with a daily podcast.  Not a bad gig.  Go give him a listen.  These Olympics have kind of snuck up on us, haven’t they?  They don’t appear to be drenched in the same amount of hype that has preceded other Games.  Which is fine with me.  Anything is better than the jingoistic circle jerk that was the 1996 Summer Olympics in Atlanta.  Maybe some European anarchists will storm the ice rink during the ice dancing competition, which would be the best thing that ever happened to the “sport” of ice dancing.

Feb 082006
 

The U.S. government is developing methods for data-mining massive amounts of on-line information, including blogs, for signs of terrorist activity.  I fully expect that the next time I try to get on an airplane, my name will appear on some kind of list that requires me to be subjected to an intensive pre-boarding search that includes the complete disassembly of my ventilator and the removal of my tracheotomy tube to ensure that I’m not carrying any miniature explosives or biological agents.  I wonder if the FBI has a file started on me yet.  Man, that would be so cool if I did.  I could request a copy of it and take it with me to assorted progressive rallies and try to impress women by showing it to them. 
 
I have to be at a 7:30 meeting tomorrow morning.  I’m debating whether I should just sleep in my chair tonight with my clothes on.  Or maybe I should just pour enormous quantities of coffee, Mountain Dew, and Red Bull down my g-tube and simply stay awake until I slip into a coma sometime tomorrow afternoon at my office. 

Feb 072006
 

Richard Dawkins is one cranky atheist.  Dawkins, a well-known British scientist who has penned several popular science books on evolution, recently did a two-part documentary entitled The Root of All Evil.  It’s an unabashedly critical look at religion’s role in global culture and history.  The series aired only in the UK, but I harnessed the arcane powers of the internets to score myself a copy.
 
I don’t disagree with much of the substance of Dawkin’s arguments.  I spent several years struggling to believe in some vague notion of a watchful, if distant, God.  But in the end, it never added up for me.  To believe in a supernatural agent that has ultimate authority over the universe seems to diminish the chaotic elegance of this reality.  It’s too pat an explanation.  I can’t believe in a divinely created universe anymore than I can believe that the tooth fairy left all that pocket change under my pillow when I was a kid or that UFOs are responsible for all those crop circles. 
 
But back to Dawkins.  Sure, I chuckled when I watched him verbally spar with a rather smug evangelical pastor.  But I’m not sure I would have told the pastor that his megachurch service reminded me of the Nuremberg rallies .  Dawkins sees religious faith as a dangerous relic of less enlightened times that has no place in this age of scientific reason, which explains his blunt words to the pastor.  And after living through the last five years under a president who, like the Blues Brothers, believes he’s on a mission from God, it’s hard to deny Dawkins this point.  But I’m a little less willing to condemn the faithful.  If biologists like E.O. Wilson are correct, humans are genetically hard-wired to believe in the supernatural.  A genetic legacy like that, reinforced by thousands of years of human history, is not likely to disappear anytime soon. 
 
Which means I’m a mutant in more ways than one. 
 

Feb 062006
 

A few days ago, I wrote about the Deficit Reduction Act of 2005 and the hardships that it imposes on Medicaid recipients.  But there are a few bright spots in the legislation, particularly the Family Opportunity Act.  The FOA enables low-income and middle-income families to purchase Medicaid for their disabled children on a sliding-fee basis.  Currently, many working parents of children with disabilities have keep their incomes artificially low to ensure that their kids will continue to qualify for Medicaid, which sometimes means turning down a raise or a promotion.  The FOA will remove those disincentives and allow parents to increase their earnings without jeopardizing their children’s access to health care
 
The FOA is modeled on existing buy-in models that some states have already implemented, including Minnesota and Wisconsin.  My own family benefited from Wisconsin’s Katie Beckett program when I was a kid.  Without it, my parents might have had to face the very real possibility of surrendering custody of me to the state as the only means of getting me the care I required.  It’s good to know that parents across the country will now have similar assistance available to them.
 
However, it should be noted that the FOA passed because of intensive lobbying by concerned parents over the last several years.  Contrast that with the cuts that will affect the poorest Medicaid recipients.  Politicians don’t want to give the impression they’re voting against working families, but it’s a little easier to punish a group of people that is essentially powerless and voiceless in the halls of Congress. 

Feb 052006
 

Last night, I saw Match Point, Woody Allen’s new thriller.  If there’s anything I’ve learned from Hollywood films, it’s never, ever have an affair.  Sure, it’s fun for a while, but then it all ends in tears sooner or later.  And the logistics of maintaining an affair are nearly impossible.  There’s always the chance that you’ll leave some incriminating evidence lying about or that one of your buddies will screw up the story about how he and you are going on a fishing trip when you’re really shacked up in some cheap motel on the interstate with that waitress from Denny’s.
 
And what’s up with Scarlett Johannsson’s voice?  Don’t get me wrong, it’s incredibly sexy, but it sounds like she goes through a pack or two of Virginia Slims a day. 

Feb 042006
 

I just got a note from Canon saying that they’re going to fix my digital camera at no cost to me.  Also, Shure replaced my $200 earbuds for free…for the second time.  Hooray for companies that actually believe in customer service. 
 
Aargh.  My p-switch needs a new battery.  When it gets low on juice, I have to click twice on letters before they’ll appear on-screen.  I’d better go take care of this. 

Feb 032006
 

The budget bill that squeaked through the House a couple days ago contains bad news for thousands of Medicaid recipients, including those with disabilities.  States will now be able to impose premiums and co-pays on even the poorest enrollees.  Most of these co-pays will range from $1-$5 dollars, which might not seem like a lot of money to most of us.  It’s important to remember, though, that most Medicaid recipients live on a few hundred dollars a month and every few bucks that go towards co-payments are a few dollars less that go towards food or housing or other basic necessities.  The nonpartisan Congressional Budget Office estimates that 65,000 people will be driven out of Medicaid because of their inability to pay these newly enacted premiums and co-pays. 
 
If anything, these cuts will make health care more expensive for everyone.  These people will not stop needing medical care.  They will present themselves at emergency rooms where they cannot be turned away.  Their conditions will generally be more severe and more expensive to treat because they lacked access to preventive care.  And the costs for treating those people will be reflected in the higher health care premiums and co-pays that everyone else will have to pay. 
 
Congress has never shown much aptitude for taking the long view of things.  However, the deliberate myopia behind these particular cuts is shameful.  They do nothing to address the long-term pressures that are ballooning Medicaid costs.  Instead, they simply delay the final reckoning for a few more years.